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Causes: Health, Public Health
Mission: Awareness, advocacy, and education regarding all aspects of rare diseases.
Programs: Rare disease awareness network engages in awareness building, educational, and advocacy activities for patients and families affected by a rare disease diagnosis. Activities will include participation in health fairs to reach out to patiens with rare diseases and the community at large to raise awareness for the cause and struggles of rare disease patients.
This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.