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- EIN 93-0979668
- 1-888-326-2185
- 4545 Trenton Loop SE Olympia WA 98501 USA
- www.nwrettsyndrome.org
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Nonprofit Overview
Causes: Down Syndrome, Health
Mission: Provide information & reverral service, offer parent support, and support research for prevention, control, & cure
Programs: Two annual conferences with international, national, & local experts. Conferences at local resorts. Respite care provided for all girls with rett syndorme in attendance
provided semi-annual newsletter to all members and developed website to provide support and information. Sponsored social gatherings for families with rett syndrome child. Newsletter and website provide program information upcoming events, medical updates, equipment available for loan & support.
research assistance to local physican