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- EIN 22-2580179
- info@nfmidatlantic.org
- (443) 423-0535
- 8855 Annapolis Rd Ste 110 Lanham MD 20706 USA
- http://www.nfmidatlantic.org
- NfMidAtlantic
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Nonprofit Overview
Causes: Centers to Support the Independence of Specific Populations, Health, Human Services, Nerve, Muscle & Bone Diseases, Neurology & Neuroscience
Mission: Neurofibromatosis, Inc.-Mid-Atlantic was established in 1979 as a support organization to provide information about neurofibromatosis (NF) to individuals and families affected by this tumor disorder of the nervous system. Appropriate referrals to health professionals and other resources are provided upon request without charge. We also provide peer counselling to NF families at no charge.
The culturally diverse Board of Directors ensures the commitment to providing dignity to all individuals affected by NF. The organization stimulates and provides funds for research into neurofibromatosis and related disorders. The Professional Advisory Board is comprised of recognized NF experts. Located near Washington, D.C. the organization has a national influence while providing local services.
Neurofibromatosis, Inc.- Mid-Atlantic also co-hosts, along with Children''s National Medical Center, (in Washington, DC), Camp New Friends, a medical specialty camp for children 7-17 affected by neurofibromatosis.
Programs: Neurofibromatosis, Inc.-Mid-Atlantic was established in 1979 to develop educational materials suitable for anyone without medical background and to provide peer-counseling for NF families. Informational meetings on various topics are conducted with a real time captionist for the deaf. An open-captioned video about NF and the organization and a tabletop display are available for professional and nonprofessional audiences. The Education Program has customized NF-1 informational packets and student packets at no charge.
NF-2 Program provides packets of information and services to individuals with NF-2 who are hearing impaired or deaf, their families and health professionals. Physician referrals are made. Advocacy on behalf of NF families for appropriate medical and other services, participation in research, educational opportunities, increased governmental funding for medical research has been a major for the organization located near Washington, D.C.
Spanish-Speaking Program has a collection of NF-1 and NF-2 materials in Spanish and provides individuals knowledgeable about NF to respond to inquiries in Spanish.
Send-A-Kid-To-Camp Program provides camperships for children with NF to attend camp.
Speakers Bureau provides experienced individuals to make presentations in school settings, in the media, and before governmental agencies.
Eighty-five percent of the organization's revenue is spent on program services.