Having a friend diagnosed with sarcoma was such a mysterious sounding disease it left me puzzled as to what it actually was.
Fortunately, a close friend understood my frustration with not knowing a thing about the disease and recommended I turn to the Internet and look up: greatnonprofits.com and The National Leiomyosarcoma Foundation. Great web sites. Questions answered! FIVE STARS!
Setsuko Yamamoto
Kagoshima, Japan
I would like to give the National Leiomyosarcoma Foundation and Great Nonprofits.org a five star rating based on a close friend being diagnosed with Leiomyosarcoma and seeing his fears eliminated by solutions was a true blessing!
These organizations provide the true tools to understanding a very troubling form of cancer that very attention was paid in past years.
FINALLY PEOPLE WHO CARE AND SHARE!
I recently learned of the National Leiomayosarcoma Foundation and in a very short time, this organization has proven to be a valuable resource in learning more about this rare disease. I fully support their work.
I am a survivor of Leiomyosarcoma going on 21 years. Thanks so much for support from National Leiomyosarcoma Foundation. It was the support and fellowship of this group that gave me life and tools to live for the day. I truly believe that with people around us , we avail and overcome so many obstacles. My LMS in my chest began in August 1996 at my 36 th birthday party. Yes, Sloan Kettering and Dr Robert Ginzburg with two fellow surgeons. Great nurses and support from a well respected hospital. I reached out and at a Hug Fest gathering in Lancaster , Pa I became involved. Resection of tumor and new healthy lifestyle of juicing and health crazed mantra afforded a new life. I was 36 with afour month old when the surgeons removed a grapefruit sized tumor comprising, 1/3 right lung. right diaphragm, 3" esophagus. as well as ling of heart. If I do believe in divine intervention and great medical doctors. Thanks www.nlmsf.org for guidance. Support, fellowship and the grace of God. Vaya con Dios, Jim Matthews Laura Tara DJ Sawyer give me purpose.
The National Leiomyosarcoma Foundation continues its mission of helping patients all over the world. As a donor, I admire and continue to support their constant efforts and dedication on behalf of patients and their families, as well as support the research work for Leiomyosarcoma.
I am fortunate to personally know the leaders of this incredible foundation, Annie and Mitchell Achee, MD, and their passion, BIG hearts and determination to helping sarcoma patients is so inspiring! I strongly encourage everyone to donate financially or volunteer.
The NLMSF is one of the only resources readily available for patients suffering from leiomyosarcoma. Most doctors, even most oncologists, cannot provide the same resources in education for patients as the NLMSF. The NLMSF is a lifeline connecting patients in need with expert physicians specializing in the disease.
It is the dedication of the people behind the National Leiomyosarcoma Foundation that really sets it apart in terms of excellence. Thanks to their devotion to fighting the disease, more people are alive today because of them. I cannot recommend them enough.
I work with all kinds of cancer patients and their family members to help them get reliable information and appropriate medical care. Leiomyosarcoma is a rare form of cancer which behaves differently than other kinds of cancer. The National Leiomyosarcoma Foundation provides accurate information and guidance to help patients and caregivers find medical experts and the best care at every stage. Caring personal contact from the leadership of NLMSF helps isolated patients and caregivers to know they are not alone. Resources include the NLMSF website; regional patient education meetings with expert physicians and researchers; internet information exchanges via Smart Patients, the Association of Cancer Online Resources (ACOR), and Facebook; and funding for vital research. Patients and their families find a safe harbor at NLMSF during the hardest time of their lives.
I am a 15 year survivor of a very extratordinaray small sarcoma type cancer. For most people who are ever diagnosed with this type of cancer they will not be here after 5 years. the current focus of cancer research will not help us for years maybe not even decades after the most prevelate of cancer research finds a way to cure or even help the majority of cancer patients. We are the orphans of mainstream cancer research, treatment or of even notice. NLMSF is THE national orginanastion that that communicates our very existence.
Anyone diagnosed with Leiomyosarcoma soon realizes she/he must learn to be a strong self-advocate on her/his medical team. The National Leiomysarcoma Foundation leaders work tirelessly to provide up-to-date information critical to patient decision making as well as personal support when needed. This foundation provides patients the opportunity to connect directly with sarcoma experts and also with other patients. The NLMSF is a resource any LMS patient can trust.
