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- EIN 82-3237977
- contact@enduringepilepsy.com
- 4607 Library Road Suite 220-1043 Pittsburgh PA 15102 USA
- enduringepilepsy.com
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- EndureEpilepsy
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Nonprofit Overview
Causes: Epilepsy, Health, Health Support
Mission: The Enduring Epilepsy Foundation seeks to work with hospitals, schools, and companies in our community to advocate for epilepsy patients. Educating the public about what epilepsy is and how to respond to a seizure. Keeping patients informed about treatment options beyond medication. Supporting them through their own journeys with brain surgery. Answering their questions and offering insight from a patient’s perspective. Together we can give a voice to patients, increase awareness & stop the stigma surrounding epilepsy. Together we can be stronger than seizures.
Target demographics: patients with epilepsy and those that support them
Geographic areas served: Western Pennsylvania
Programs: The Purple Pillow Project - When Founder & Executive Director Katrina Kilgore was in the hospital for her brain surgery, she always took a pair of pillows which were handmade by her maternal grandmother, Linda Meyers, and items to keep her busy such as a deck of cards, coloring and puzzle books from her paternal grandmother, Lois Kilgore. Hospital pillows are not exactly soft & comfortable, and going through the process of surgery evaluation requires a patient to take seizures while being monitored. Intracranial EEG uses depth probes which can be very painful. Waiting can lead to both patients and their families being anxious & frustrated. Since having her craniotomy in 2013 Katrina has unfortunately lost both of her grandmothers. Linda, who also had epilepsy, passed from pancreatic cancer. And Lois, who helped Katrina recover from her epilepsy surgery, was sadly lost to Alzheimer’s. Now it is our hope that the Enduring Epilepsy Foundation can develop this project in their memory. This project will be a fitting tribute to honor & remember these women as purple is the color for epilepsy, pancreatic cancer, and Alzheimer’s awareness. The foundation will work to offer packages to patients when they are hospitalized for surgery evaluation with a soft handmade pillow and items to keep them busy, calm & focused on something aside from seizures; just as Katrina’s grandmothers did. Many organizations offer such items to children but do not consider adult patients who deal with chronic illnesses such as epilepsy throughout their lives. The Enduring Epilepsy Foundation hopes to fill that need.