Ehlers Danlos Syndrome Network Cares

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This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.

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EDSLynnCARES Board Member

Rating: 5

10/20/2015

EDS Network CARES is currently the only patient foundation funding Ehlers-Danlos Syndrome Research. We have funded 3 EDS Research projects in less than 10 years, since the foundation started.
100% of the research money fund goes towards research. Everyone who keeps this foundation going are all volunteers. There's no paid staff.
We work hard on EDS awareness, research and support.

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