Mission: Duplication Cares is committed to supporting families with children diagnosed with 7q11.23 Duplication Syndrome, as well as being dedicated to raising awareness in the medical community about the existence and treatment of this disorder.
Results: We have a network of over a 100 families and we have created multiple streams of networking for these families. Our parent support group is a critical part of Duplication Cares Mission.
We have spent the last few years raising money and we are hoping to make strides in the awareness in the coming years!
Target demographics: families all over the world, once they find a family member has 7q11.23 Duplication Syndrome.
Direct beneficiaries per year: Over 100 families connect.
Geographic areas served: Children and families all over the world.
Programs: Our Family Support Group. Plus, private access to our website and closed FB page for communicating.
This has been a wonderful resource for my family. Our son was diagnosed with Dup7 in March 2013 at 1 year old. We've learned so much from this group about what to expect and how to prepare for our son's bright future! Because Dup7 is so rare, this group is priceless to us!