CureSHANK is one of the most thoughtful and well-run nonprofits I have had the pleasure to work with as a board member or consultant. Being entirely run by parents of kids affected by PMS is a unique quality that factors into their decision-making and the way they run the organization. This is a level of passion and dedication that cannot be matched by another type of structure. I have zero doubt that the contributions of CureSHANK will lead to treatments and a cure in my lifetime.
This organization is leading the way in research for the debilitating condition of Phelan-McDermid syndrome. As a grandparent to a child with PMS, I will do anything I can to support this org, as I believe it holds the key to improving the future of my grandson and all others that suffer from this challenging and disastrous syndrome.