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- EIN 22-3634814
- (908) 507-6844
- 99 Wall Street 4814 New York NY 10005-4301 USA
- www.cchsnetwork.org
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Nonprofit Overview
Causes: Health
Mission: The cchs family network's mission primarily focuses on providing education and support to families and patients with cchs (congenital central hypoventilation syndrome)as well as inter-family and family-physician communication and supporting and facilitating cchs research.
Programs: During 2017 the organization was able to award 3 research projects for cchs researchers
awarded scholarships to young adults/families to attend our international cchs family conference. This will allow cchs affected persons to attend this educational and supportive conference which is a life changer for those who attend.
partnered with national organization of rare disorders (nord)which has opened new doors for our family network regarding outreach, registry and research opportunities.