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2018 Top-Rated Nonprofit

Bcureful

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Causes: Health

Community Stories

22 Stories from Volunteers, Donors & Supporters

Professional with expertise in this field

Rating: 5

It is a privilege to be able to partner with this amazing organization which does so much for our patients and their families. Bcureful is leading the way in innovative nonprofit work, and has had tremendous impact in advancing care for children with Tuberous Sclerosis Complex. Thank you for all you do!!Howard Weiner, MD

Board Member

Rating: 5

What I love about Bcureful is its passion for the TSC community. Bcureful is a totally volunteer organization, which allows us to invest almost everything we raise into making a better community for our loved ones affected by TSC. Thank you to all our wonderful supporters. We truly appreciate your help.

Joanne Z.1

Donor

Rating: 5

I appreciate the dedication and commitment that exists within Bcureful to meet needs within the TSC community. They are giving hope and making a difference in the lives of many families.

General Member of the Public

Rating: 5

While there are countless non-profits, Bcureful stands alone! It is a phenomenal organization that is making a huge difference in fighting the battle to cure tuberous sclerosis complex .
They have added to hospitals, families, communities, medical education, and research.
Our family is most grateful for Bcureful, all its hard work and accomplishments.

Professional with expertise in this field

Rating: 5

I have known the great people at Bcureful for several years now. It is wonderful what Bcureful is able to do to help patients get access to care and to participate in clinical trials that are aimed at improving the lives of patients affected by TSC.

Client Served

Rating: 5

Within a few years after joining the Tuberous Sclerosis Alliance in 2005, I wanted to organize a national educational meeting for the nurse coordinators at the TSC Clinics we recognized around the country. Bcureful was instrumental in helping me accomplish this by providing funding to allow me to bring four experienced TSC nurse coordinators to Washington DC in June 2017 to plan the first-ever national meeting for TSC Clinic nurses entitled, "Empowering Nurse Care Coordination through the Global Community", held in conjunction with the 2018 World TSC Conference in Dallas Texas on July 26. Thank You Bcureful!

Stephanie E.2

Donor

Rating: 5

Bcureful does amazing work to help those with TSC. Our organization was honored to helpBcureful place 16 families in a trial that looks promising for children with this terrible disease. They have an amazing mission and goals to raise awareness and funds to help those in need.

Donor

Rating: 5

I have been very impressed with BCureful in its mission to seek out unmet needs in the tuberous sclerosis community and try to meet them with incredible dedication. They have set high goals for funding research, and been successful. As a parent of a child with TSC, I am very impressed with the work BCureful does on our behalf.

Professional with expertise in this field

Rating: 5

It has been a true honor to partner with Bcureful over the years. Our two organizations work well in concert with one another and have similar missions aimed at improving the lives of individuals and families living with tuberous sclerosis complex (TSC).

As an organization, Bcureful shows their compassion and support for the TSC community and they are an inspiring team!

Professional with expertise in this field

Rating: 5

As collaborators, we have enjoyed an extraordinary partnership with Bcureful in providing hope and help to the tuberous sclerosis complex (TSC) community. Our organizations compliment each other and together we work to improve the quality of life of individuals and families living with the challenge of the disease.

Bcureful is inspiring and approaches any challenges with enthusiasm and integrity. They find solutions to difficult issues, such as the need for families to travel to participate in clinical trials, medical appointments or the World TSC Conference.

They are invaluable partners in the fight against TSC.

Kari Luther Rosbeck
President and CEO
Tuberous Sclerosis Alliance

1

Board Member

Rating: 5

Bcureful is like a tugboat. It is there when and where it can be of help, it is agile and modest, it does not draw attention to itself but rather to the massive ocean liner sized cause it works to advance: research towards a cure for Tuberous Sclerosis Complex while raising public awareness of the disorder and helping to bring expert medical care and support to people where they need it. The captain of this tugboat is the intrepid Julie Scroggins, founder & chairman. Each of us who have the honor of contributing our time, talent and treasure to the causes of Bcureful with her are grateful for her relentlessly positive and passionate leadership and capacity to care for everyone around her.

Professional with expertise in this field

Rating: 5

BCureful is a superb professional organization that is dedicated to providing the best care for children and adults with TSC and their families. Their generosity and support allowed my vision to create a multidisciplinary TSC Center at Ann & Robert H. Lurie Children’s Hospital to be possible. They continue to inspire and support projects that improve the lives of families that are impacted by TSC. I am very fortunate to have had the opportunity to collaborate with BCureful.

1

Donor

Rating: 5

Bcureful is a great nonprofit organization where all the money raised goes to help those in need. Awesome!

1

Donor

Rating: 5

BCureful is an amazing organization, where 100% of funds raised go directly to TSC research or families. Therir lateness project has allowed TSC families in remote areas to get the medical advice they so badly need through Telemedicine.

3

Professional with expertise in this field

Rating: 5

Bcureful is an incredible organization. Founded by an inspiring individuals who have collectively redefined how families can make an extraordinary difference in others' lives and in healthcare. Having worked with more than 20 lay organizations involved in health areas, Bcureful is one of my favorites - for the spirit that flows through leadership and the community that has effectively promote health and research.
Orrin Devinsky

3

General Member of the Public

Rating: 5

This organization is amazing. It is led by a group of passionate individuals that volunteer their time and resources to this cause. I work with a lot of non-profit organizations, and few have done as much in as little time as Bcureful.

4 Seth9

General Member of the Public

Rating: 5

My grandson Ace has TSC and Becureful is helping to fund the research to help kids not go threw what Acer has to.

3

General Member of the Public

Rating: 5

Becureful is a blessing to any family dealing with TSC! I am thankful for all your hard work and dedication!

2

Board Member

Rating: 5

My journey with Bcureful started as a mom with a newly diagnosed child in an area where there is not TS related healthcare. Bcureful went above and beyond getting us the care that we needed and I am very grateful to be able to pay them back by serving on the board and helping other families like mine.

4

Board Member

Rating: 5

Bcureful makes things happen with quick results, which sets them apart. Founder Julie Nerheim Scroggins does a remarkable job advocating for advances with the right people, doctors, organizations so that money raised almost immediately helps open a TSC center or funds cutting-edge research. As a former Board Member, I witnessed collected donations travel a straight line to experts and hospitals, making a difference to families in need of their services. Keep up the good work!