Using an all volunteer staff the American Dysautonomia Institute has made a variety of research grants, including to the National Institutes of Health, Mayo Clinic, and Medical College of Wisconsin.
We also participate in reducing misdiagnosis by increasing disease awareness of health care providers. Similarly, we have lobbied the National Library of Medicine to make information, about non-familial dysautonomia more easily and accurately accessible.
Gil Chinitz, JD, MLIS, Volunteer Secretary/Treasurer
Review from Guidestar