Epilepsy Services Foundation, Inc. Reviews
The epilepsy foundation has made a huge impact on my family. Four years ago I lost my brother who had epilepsy and because of this wonderful foundation we are able to send children who have epilepsy to camp every summer in my brothers' name. Tom Orth has been in contact with my mom since the beginning. He helped my parents get through so much. We appreciate everything he has done for my whole family.
Once I had received an initial diagnosis of Epilepsy from the USF Department of Neurology, I was lost. I had attempted on several occasions to find support on my own, but unfortunately without success. There were several reasons for this, inclusive of an inability to connect with patients like myself: adults who were suffering from epilepsy. Many of the epilepsy patients I originally met were children, under the age of 18, many suffering from Grand Mal seizures and in the care of parents. I, unfortunately, could not connect with them, their problems relating to the type of seizure I suffer from, as well as the social issues attached to it. The Epilepsy Services Foundation offered a viewpoint I had not seen before. It took a one on one approach to me, asking questions, both about my medical problems and issues as well as my personal life and social struggles. They proceeded to connect me with several doctors who took me in, and directed a "fix it" approach to my illness. In addition, Epilepsy Services Foundation also connected me with several support groups, and proceeded to keep me informed on a regular basis in regards to informative seminars and events throughout the Tampa Bay area. It has now been 8 years, and several surgeries later. I am unfortunately still a seizure patient. However, I am also still being kept up to date on changes in the area regarding informational events, seminars and socials that allow me to learn, grow and connect with professionals as well as patients like myself. Epilepsy Services Foundation is an excellent program from my perspective: that of a seizure patient. I am glad for, and appreciative of, the opportunities they continue to present to me.
Ways to make it better...
If I had to make changes to this organization, I would...
Create more options for support group meetings...perhaps on a Saturday.
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How did you learn about this organization?
Via USF Epilepsy Department