Epilepsy Services Foundation, Inc.

Rating: 4.99 stars   82 reviews

Address:

4628 North Armenia Avenue Tampa FL 33603-2706 USA

Mission:

The Epilepsy Services Foundation, Inc. is committed to creating a better future and environment for persons affected by epilepsy in West Central Florida, primarily children, teens, young adults and their families. The office is located in Tampa, FL.

Results:

ESF trained 46 mentors who can provide education and support to other parents, families and children affected by epilepsy. ESF trained 18 volunteers to meet with families of newly diagnosed children with epilepsy at the St. Joseph Children's Hospital ESF provided 25 camp scholarships and 15 scholarships for families to attend a family weekend retreat in 2016. ESF provided 5 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus in 2016. ESF provided 7 scholarships for persons affected by epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.

Target demographics:

Persons affected by epilepsy, primarily children, teens, young adults & their families

Direct beneficiaries per year:

800-1,000 persons

Geographic areas served:

West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando counties.

Programs:

Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer

2015 Top-Rated Nonprofit
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More Info

813-374-8907
http://www.epilepsysf.org

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Reviews for Epilepsy Services Foundation, Inc.

Role: General Member of the Public
Rating: 5 stars  

I cannot speak highly enough about this organization and the services its Board, Executive Director, volunteers, and supporters provide for the community and, particularly, persons effected by epilepsy and their loved ones. ESF's dedication to educating and growing awareness in the community about the challenges of epilepsy is unmatched. The love and outreach ESF's members give to individuals who deal with epilepsy, and the support shown to their families, is constant. ESF's programs and fundraising activities have bettered so many lives. I am a former board member and volunteer, and now just a fan. I feel blessed and grateful to have been involved in such a laudable non-profit organization.

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I have never worked with a more caring and dedicated group of people who desire only to help individuals affected by epilepsy, whether directly or indirectly through their loved ones. My participation with ESF began by virtue of the fact that my employer, Fowler White Boggs P.A., has been a long time sponsor and supporter of this organization. However, even if I did not have professional ties to ESF, I would gladly volunteer to assist this non-profit, which is comprised of giving and selfless individuals who make this world a better place on a daily basis. Unlike well-known national non-profit organizations, ESF is striving to expand through grass root connections and local/regional awareness with the ultimate goal of providing a wider range of support, assistance, and educational services. In my brief time volunteering with ESF, I have seen the efforts of its volunteers deeply touch the lives of children and adults who are affected one way or the other by epilepsy. Dedicating my time to this organization has been nothing but a pleasure. Please support our cause!

I've personally experienced the results of this organization in...

the faces of children who can finally go to summer camp with their peers in a safe, friendly and fun environment.

If I had to make changes to this organization, I would...

What I've enjoyed the most about my experience with this nonprofit is...

the friends I have made and the reminder that there is so much good in this world working behind the scenes.

The kinds of staff and volunteers that I met were...

absolutely fabulous.

If this organization had 10 million bucks, it could...

bring greater awareness regarding an affliction that affects millions of Americans but which is misunderstood, often misdiagnosed and regularly stigmatized.

Ways to make it better...

I had more money and time to give.

In my opinion, the biggest challenges facing this organization are...

assisting as many people as possible in the face of insufficient heath care and medical assistance.

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-9-01

 
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Role: General Member of the Public
Rating: 5 stars  

This is a fantastic organization that serves to raise awareness about epilepsy, assist those affected by epilepsy, and simply rallies the entire community together. All the members in this association are so passionate for this cause, it's inspiring! Great work, keep it up!

-Matt C.

 
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Rating: 5 stars  

It was a great experience. Everyone seemed really happy to be there, the ceremony didn't take up much time, and along with the scholarships, the epilepsy services foundation even payed for our dinners. Several people showed up dressed professionally. I don't have any complaints. It was a great ceremony.

 
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Role: General Member of the Public
Rating: 5 stars  

I was referred to esf by another parent and I am so happy with the resource. I explained my son, 23, needed to find a support group. He said he knew there was a need and a year later, we have a group of 12 that keeps growing. We have met so many wonderful, supportive people through esf!

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I can begin to tell you how hard it is to believe that someone one in your family has epilepsy and really not even know what it is amongst all the other tragedies that are out there. Until my wife and I got the number of the ESF foundation of Tampa Bay and our granddaughter lives in Missouri, but Tom Orth, Sandy VanHook have been the wealth of knowledge and support anyone could have. They have provided us with more info and ideas and just general knowledge that has helps us help our kids help our granddaughter, we can say enough about them. They are always will to do whatever, even if its just to listen.

Jeff Burke

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

My Granddaughter was recently diagnosed with Epilepsy and I contact Tom @ ESF and he and his staff have given me so much of their time to help me understand what my son is facing and what my granddaughter is up against. They have been sounding board, they even met with my son & his family while they were visiting and gave them so much information that not even there doctor had shared with them.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

My son was diagnosed with epilepsy at birth he started having seizures 7 hours after he was born he is now 3 years old. This is such an amazing group of people who go above and beyond for other.

 
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Rating: 5 stars  

1 person found this review helpful

The epilepsy foundation has made a huge impact on my family. Four years ago I lost my brother who had epilepsy and because of this wonderful foundation we are able to send children who have epilepsy to camp every summer in my brothers' name. Tom Orth has been in contact with my mom since the beginning. He helped my parents get through so much. We appreciate everything he has done for my whole family.

 
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Role: General Member of the Public
Rating: 4 stars  

1 person found this review helpful

Once I had received an initial diagnosis of Epilepsy from the USF Department of Neurology, I was lost. I had attempted on several occasions to find support on my own, but unfortunately without success. There were several reasons for this, inclusive of an inability to connect with patients like myself: adults who were suffering from epilepsy. Many of the epilepsy patients I originally met were children, under the age of 18, many suffering from Grand Mal seizures and in the care of parents. I, unfortunately, could not connect with them, their problems relating to the type of seizure I suffer from, as well as the social issues attached to it. The Epilepsy Services Foundation offered a viewpoint I had not seen before. It took a one on one approach to me, asking questions, both about my medical problems and issues as well as my personal life and social struggles. They proceeded to connect me with several doctors who took me in, and directed a "fix it" approach to my illness. In addition, Epilepsy Services Foundation also connected me with several support groups, and proceeded to keep me informed on a regular basis in regards to informative seminars and events throughout the Tampa Bay area. It has now been 8 years, and several surgeries later. I am unfortunately still a seizure patient. However, I am also still being kept up to date on changes in the area regarding informational events, seminars and socials that allow me to learn, grow and connect with professionals as well as patients like myself. Epilepsy Services Foundation is an excellent program from my perspective: that of a seizure patient. I am glad for, and appreciative of, the opportunities they continue to present to me.

If I had to make changes to this organization, I would...

Create more options for support group meetings...perhaps on a Saturday.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

How did you learn about this organization?

Via USF Epilepsy Department

 
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