August 16, 2012
Once I had received an initial diagnosis of Epilepsy from the USF Department of Neurology, I was lost. I had attempted on several occasions to find support on my own, but unfortunately without success. There were several reasons for this, inclusive of an inability to connect with patients like myself: adults who were suffering from epilepsy. Many of the epilepsy patients I originally met were children, under the age of 18, many suffering from Grand Mal seizures and in the care of parents. I, unfortunately, could not connect with them, their problems relating to the type of seizure I suffer from, as well as the social issues attached to it. The Epilepsy Services Foundation offered a viewpoint I had not seen before. It took a one on one approach to me, asking questions, both about my medical problems and issues as well as my personal life and social struggles. They proceeded to connect me with several doctors who took me in, and directed a "fix it" approach to my illness. In addition, Epilepsy Services Foundation also connected me with several support groups, and proceeded to keep me informed on a regular basis in regards to informative seminars and events throughout the Tampa Bay area. It has now been 8 years, and several surgeries later. I am unfortunately still a seizure patient. However, I am also still being kept up to date on changes in the area regarding informational events, seminars and socials that allow me to learn, grow and connect with professionals as well as patients like myself. Epilepsy Services Foundation is an excellent program from my perspective: that of a seizure patient. I am glad for, and appreciative of, the opportunities they continue to present to me.
Ways to make it better...
If I had to make changes to this organization, I would...
Create more options for support group meetings...perhaps on a Saturday.
Will you volunteer or donate to this organization?
How much of an impact do you think this organization has?
When was your last experience with this nonprofit?
How did you learn about this organization?
Via USF Epilepsy Department
MY ROLE:General Member of the Public