Epilepsy Services Foundation, Inc.
Rating: 4.98 stars 60 reviews 1,219
Location: 4628 North Armenia Avenue Tampa FL 33603-2706 USA
Results: ESF trained 32 mentors who can provide education and support to other parents, families and children affected by epilepsy. ESF trained 18 volunteers to meet with families of newly diagnosed children with epilepsy at the St. Joseph Children's Hospital ESFprovided 22 camp scholarships and 10 scholarships for families to attend a family weekend retreat. ESF provided 4 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus. ESF provided 3 scholarships for 3 persons with epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.
Target demographics: Persons affected by epilepsy, primarily children & families
Direct beneficiaries per year: 800-1,000 persons
Geographic areas served: West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando, Sumter, Citrus.
Programs: Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer
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I was an epilepsy patient at the time about two or three years ago. I didn't know I had epilepsy until my mom saw one happen. For some reason my neurologist didn't suggest this foundation until a year or two into the process. After we found this opportunity it worked out well, it helped pay for eeg's either in the hospital, at the doctor;s office or at home. It helped me determine what type of seizure i had. My seizures were so small that nobody noticed them until my mom saw me had one.
Best charity I've ever known. They actually provide services like health care. Other local charities seem to just provide information.
The epilepsy foundation has made a huge impact on my family. Four years ago I lost my brother who had epilepsy and because of this wonderful foundation we are able to send children who have epilepsy to camp every summer in my brothers' name. Tom Orth has been in contact with my mom since the beginning. He helped my parents get through so much. We appreciate everything he has done for my whole family.
Since 2005, it has been my profound pleasure to be involved with Tom Orth and the Epilepsy Services Foundation in Tampa, FL. With Tom's help 24/7, I was able to take my son, Joseph McElroy, to the best doctors. Tom always made himself available to attend these appointments with us. My son passed away on September 4, 2010, but the best part of his life was being introduced to Camp Boggy Creek through Tom. Joseph attended Camp Boggy Creek for two summers through the Epilepsy Services Foundation and all this was done at no charge to us. No words can describe all that Tom and the Epilepsy Services Foundation did for Joseph and my family. Tom still remains in contact with us and we are forever grateful. Tom and the Foundation have superbly exceeded our expectations and are truly worthy of remaining on the Nonprofits 2014 Top-Rated List.
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I wanted to get involved in awarness for Epilepsy in the local communnity. I researched and came across Epilepsy Service Foundation (ESF) and met Tom Orth. I was very impressed on the great job he has done organizing the events for ESF. I was able to volunteer at the Golfing for Kids Classic on May 9th, 2014 .... I was very impressed on what a great turnout and had so much fun ! I recently attended ESF SeptemBEERfest......another great event !I believe that there should be more awarness of Epilepsy and so does my company..... When I found out that ESF also helps fund scholarships to send 25 kids to Camp Boggy Creek ,,,,, I was more excited to get involved. If you do not know about Camp Boggy Creek ,,,, it is a AMAZING camp that kids can be kids !!! I was so impressed !!!!! I look forward to working with Tom and the ESF .... next few events count me in ! Lets Walk Together for Epilepsy Saturday March 7th 2015 in Lakeland & Seminole. Also on March 28th, 2015 at USF Track and field in Tampa, Fl. Count me in as a volunteer for all future events !!! Thanks Tom for all your help !!!
I learned about ESF last year when my daughter was diagnosed with epilepsy. Tom Orth and the other families have served as an excellent resource for me and my family with regard to finding a doctor or just basic questions regarding my daughter's seizures and her care. My experience with this organization has been so positive and comforting, especially for my daughter. I am certainly looking forward to being a more active participant with all the events they have planned, as well as to one day serve as a resource for other families. I can honestly say that when I walked out of my first support group meeting with my daughter, I felt as though a huge weight had been lifted off my shoulders. It was extremely emotional for me and the outpouring of care and sincere concern that I felt from the other families present was overwhelming. I now know I have an additional support system and am so happy to have found ESF.
I cannot say enough for the Epilepsy Services Foundation I am involved in. I decided to get involved in the foundation after being referred to Tom Orth through my neurologists. After battling epilepsy all through out my teen years and even through college I decided I wanted to help and get involved. It wasn't until I had epilepsy surgery that I was cured. It really is a disease that needs more attention and education. It is hard to know what your options are and to deal with living on a day to day basis when so many people know so little about the disease. The Epilepsy Services Foundation is truely dedicated to educating and spreading awareness. We have a wonderful team of volunteers that are living with or know someone who has epilepsy and want to help others with the disease. Everyone is truely motivated and this is a 100% honest foundation. I have no question everyone who is involved is in it for the right reasons!
My family and I have been involved with ESF over the last few years, as they had renamed their camp scholarship in honor of my brother Joseph, who passed away in 2010 from a silent seizure. Since then, we hold a fundrasier each January to raise money and help send children with epilepsy to camp. Working with Tom Orth, director of ESF is a wonderful, easy, stress free experience. He truly cares about the success of our event, and makes so much effort to keep in contact with my family and I. We are so grateful to Tom and the members of ESF for supporting a cause that is so dear to us.
I stumbled upon the Epilepsy Services Foundation when I was looking for a walk to participate in when my son was newly diagnosed with epilepsy. That day of the walk was the first time I felt someone truly listened and was interested in our story. ESF made such an impact on my entire family that we have been a part of the organization since. We have volunteered and participated in many functions. My son and I both spoke on Epilepsy Education Day for ESF last year and recently participated in the Meet and Greet program. I am honored to be apart of such an amazing organization that not only helps those affected with epilepsy but helps the entire family. Every time I talk to the Executive Director Tom Orth I learn something new, he is knowledgeable and passionate about helping others. ESF has many programs that can help everyone in the family. I am forever thankful for the help and support they have given my son and my family.
I have volunteered and known the organization for many years. I have been at the HARE Racing Experience many times. It is always a pleasure to work with Tom and be at these events. Everything is so organized and well planned out. They are very passionate about everything they do and are extremely committed to doing their best for everyone affected by epilepsy.