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Nonprofit Overview

Causes: Epilepsy, Health, Health Care, Public Health

Mission: The Epilepsy Services Foundation, Inc. is committed to creating a better future and environment for persons affected by epilepsy in West Central Florida, including children, teens, young adults and their families. The office is located in Tampa, FL.

Results: ESF trained over 50 mentors who can provide education and support to other parents, families and children affected by epilepsy. ESF trained 18 volunteers to meet with families of newly diagnosed children with epilepsy at the St. Joseph Children's Hospital ESF provided 25 camp scholarships and 15 scholarships for families to attend a family weekend retreat in 2016. ESF provided 5 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus in 2016. ESF provided 7 scholarships for persons affected by epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.

Target demographics: Persons affected by epilepsy, primarily children, teens, young adults & their families

Direct beneficiaries per year: 800-1,000 persons

Geographic areas served: West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando counties.

Programs: Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer

Community Stories

85 Stories from Volunteers, Donors & Supporters

1

Professional with expertise in this field

Rating: 5

This organization has been the grass roots foundation for the greater Tampa Bay area for many years. They have keep the light on for many of our people stricken with epilepsy, as a guild post for both information and outreach. Tom all to well understands the complex implications of both health and social economic struggles that this group of people contend with on a daily basis.
Brian Harper R.EEG.T

Professional with expertise in this field

Rating: 5

The ESF has a genuine focus of serving patients and families in the community. I have a personal friend who's daughter has been able to attend Camp Boggy Creek and it has been a blessing to her and the family. This organization offers resources and events that are greatly needed and make an impact for many people. The ESF is a place where many can go to find help, encouragement and a sense of community.

Volunteer

Rating: 5

Years ago I had the opportunity to attend a day long session at Camp Boggy Creek with Tom Orth of the Epilepsy Services Foundation. This camp allows children that may otherwise be considered different from other kids to feel "normal". Each week there is a different group of kids to come to the camp. We obviously were able to observe the week when kids with Epilepsy were there. The staff was amazing, there were doctors and nurses on site the entire time, but the most noticeable thing at the camp were the smile on every one of the children's faces.

I have helped Tom with many events throughout the years. When I had a chance to see the end results of all our hard work, it made everything worth while. Epilepsy Services Foundation is EXTREMELY well run and always keeps the mission of helping kids and their families impacted by Epilepsy at the forefront. Kudos to Tom Orth and Epilepsy Services Foundation!

Professional with expertise in this field

Rating: 5

I have worked with ESF since 2012 as hospital liaison between families with children who are diagnosed with epilepsy and volunteer/mentors who represent the HOPE program. I have attended educational in service programs and social activities as well, and continue to be impressed with the community outreach ESF provides. It continues to be a privilege and a pleasure to work with this great organization.

General Member of the Public

Rating: 5

I cannot speak highly enough about this organization and the services its Board, Executive Director, volunteers, and supporters provide for the community and, particularly, persons effected by epilepsy and their loved ones. ESF's dedication to educating and growing awareness in the community about the challenges of epilepsy is unmatched. The love and outreach ESF's members give to individuals who deal with epilepsy, and the support shown to their families, is constant. ESF's programs and fundraising activities have bettered so many lives. I am a former board member and volunteer, and now just a fan. I feel blessed and grateful to have been involved in such a laudable non-profit organization.

Previous Stories
1

Volunteer

Rating: 5

I have never worked with a more caring and dedicated group of people who desire only to help individuals affected by epilepsy, whether directly or indirectly through their loved ones. My participation with ESF began by virtue of the fact that my employer, Fowler White Boggs P.A., has been a long time sponsor and supporter of this organization. However, even if I did not have professional ties to ESF, I would gladly volunteer to assist this non-profit, which is comprised of giving and selfless individuals who make this world a better place on a daily basis. Unlike well-known national non-profit organizations, ESF is striving to expand through grass root connections and local/regional awareness with the ultimate goal of providing a wider range of support, assistance, and educational services. In my brief time volunteering with ESF, I have seen the efforts of its volunteers deeply touch the lives of children and adults who are affected one way or the other by epilepsy. Dedicating my time to this organization has been nothing but a pleasure. Please support our cause!

General Member of the Public

Rating: 5

This is a fantastic organization that serves to raise awareness about epilepsy, assist those affected by epilepsy, and simply rallies the entire community together. All the members in this association are so passionate for this cause, it's inspiring! Great work, keep it up!

-Matt C.

General Member of the Public

Rating: 5

It was a great experience. Everyone seemed really happy to be there, the ceremony didn't take up much time, and along with the scholarships, the epilepsy services foundation even payed for our dinners. Several people showed up dressed professionally. I don't have any complaints. It was a great ceremony.

Client Served

Rating: 5

This is a great organization that has helped our son with epilepsy in so many ways over the years. When he was a young child, they took him to Lightning and Bucs games, they sponsored him to go to summer camp and family weekends at Boggy Creek. This year he will be attending college, and he was awarded a scholarship through ESF.

Client Served

Rating: 5

Growing up with a brother who has been diagnosed with Epilepsy for the last 18 years, I have come to know Tom Orth and the work that they do at the Epilepsy Service Foundation. They have helped so many children, teens, and young adults strive. The Epilepsy Service Foundation portrays a positive impact by promoting awareness through newsletters and Easter day 1mile and 5Ks runs. My brother has gone to Camp Boggy Creek, where families don't have to worry about leaving their kids because there is an around the clock care for them. In addition, it allowed my brother to be around kids with a similar diagnosis, so he was able to interact with others without judgment. Tom Orth has made a positive impact to those not only diagnosed with Epilepsy, but also their families. Recently, I was awarded a Beacon of Hope Scholarship to use towards College in order to become a Doctor. Tom Orth and the Volunteers at the Epilepsy Service Foundation have made a lasting impact on my family’s life.

Tiphanie H.

Client Served

Rating: 5

The Epilepsy Services Foundation is one that truly loves and works for epileptics and their families everywhere. They sacrifice on a consistent basis so that people like myself, who has been diagnosed with epilepsy for the past 17 years, can have a chance at a normal life. Most recently, I was awarded a $250 scholarship. Being someone who lives on a fixed income with one child and one on the way, this not only makes a difference for me, but also for all the people I intend to help as a future physician's assistant. Epilepsy is still so very unaware among he public and therefore does not see the same donations that other charities see, but they are more than deserving. Please do all you can to help.