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Nonprofit Overview

Causes: Health

Mission: Founded in january 2010 by chicagoans mike and mariann stanton after the sudden unexplained death in epilepsy (sudep) of their four-year-old son danny, the danny did foundation is dedicated in its mission to prevent deaths caused by seizures. With more than three million people facing the challenges of epilepsy in the u. S. -and more than 50 million people affected by epilepsy worldwide-the issue of aggressively addressing sudep is as urgent as it is logical.

Programs: The danny did foundation holds as its main goals 1) advancing awareness of epilepsy and sudden unexpected death in epilepsy (sudep), 2) enhancing the sudep communication model between medical professionals and families who are impacted by seizures, and 3) the mainstreaming of devices and technologies that may assist in preventing deaths caused by seizures. Danny did achieved these goals by subsidizing the cost of the emfit movement monitor for 69 families in need, subsidizing the cost of the smartwatch device for 29 families in need, subsidizing the cost of sami alert devices for 16 families in need; and counseling hundreds of additional families regarding these options. Danny did also reached its goals via the distribution of its seizure safety and sudep brochures to hospitals, doctors, advocates and families nationwide, in both english and spanish; by using print ads, radio ads, billboards and social media to advance awareness and education; by sponsoring sudep-related events; and by presenting at conferences, schools and meetings across the country to spread understanding and tolerance for seizures and people with epilepsy. Danny did also funded scholarships for four families to attend the epilepsy educational expo and awareness day at disneyland.

Community Stories

2 Stories from Volunteers, Donors & Supporters

1 Laura67

Donor

Rating: 5

The Danny Did Foundation is aggressively spreading knowledge about SUDEP. Even within the Epilepsy community, too few people knew that epilepsy could kill. I have donated personally, referred people, and now am spearheading a fundraiser - I have increased my level of involvement because their mission is clear, their goals and activities are transparent, and they already have a track record of success. This is how a grass roots non-profit should work - making a big difference in a very tangible way right from the start.

Scot G.

Donor

Rating: 5

The Danny Did Foundation is an outstanding organization comprised of caring, thoughtful, forward-looking, and motivated folks that work tirelessly towards their goals:

(1) advancing awareness of Sudden Unexplained Death in Epilepsy (SUDEP) and enhancing the SUDEP communication model between medical professionals and those afflicted by seizures, and (2) the mainstreaming of seizure detection and prediction devices as well as other technologies that may assist in preventing deaths caused by seizures)

Every decision they make, every interaction they have, every dollar they spend goes towards achieving their goals. Every time I talk to those associated with Danny Did or attend one of their events I feel compelled, motivated, and inspired to help in anyway possible. The DannyDid foundation does everything right and is making a significant positive impact.