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18 Reviews
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July 5, 2012
1 person found this review helpful

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July 5, 2012
1 person found this review helpful

The Danny Did Foundation is aggressively spreading knowledge about SUDEP. Even within the Epilepsy community, too few people knew that epilepsy could kill. I have donated personally, referred people, and now am spearheading a fundraiser - I have increased my level of involvement because their mission is clear, their goals and activities are transparent, and they already have a track record of success. This is how a grass roots non-profit should work - making a big difference in a very tangible way right from the start.

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

June 29, 2011

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June 29, 2011

The Danny Did Foundation is an outstanding organization comprised of caring, thoughtful, forward-looking, and motivated folks that work tirelessly towards their goals:

(1) advancing awareness of Sudden Unexplained Death in Epilepsy (SUDEP) and enhancing the SUDEP communication model
between medical professionals and those afflicted by seizures, and (2) the mainstreaming of seizure detection and prediction devices as well as other technologies that may assist in preventing deaths caused by seizures)

Every decision they make, every interaction they have, every dollar they spend goes towards achieving their goals. Every time I talk to those associated with Danny Did or attend one of their events I feel compelled, motivated, and inspired to help in anyway possible. The DannyDid foundation does everything right and is making a significant positive impact.

The Great!

I've personally experienced the results of this organization in...

my interaction with the founders and the folks associated with the organization. I have seen first hand the profound difference they have made for families dealing with epilepsy. I have seen the education materials they have helped develop and the progress they have helped make in the medical community.

Ways to make it better...

If I had to make changes to this organization, I would...

Not change anything

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

What specific problem, purpose, priority, or project prompted your gift?

My consistent interaction with the foundation and the work that I see them do day in and day out and the progress they are making. Every interaction with them inspires me to do more. I always walk away motivated to help others. Not many organizations can do that.

Why did you make your donation at this time?

I try to make donations once a quarter so that I can at least do some small part to help them continue to have a positive impact.

What would you tell others about this organization?

I would tell others that it is one of the best organizations that live true to their goals and put every dollar, hour, and resource towards accomplishing those goals.

When was your last experience with this nonprofit?

2011

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