My 14-yr old son who has autism suddenly developed seizures one night as he slept. He had several seizures soon after, all while he slept. I am so grateful to be nearby when he suffered them because he had turned blue from lack of oxygen.
So I decided to just stay awake while he sleeps and watch over him. But that is not sustainable. I went online and found an alarm that would chime when he's having a seizure to alert me. But it was too costly for us. As I dug thru the internet I found Danny Did. With very little thing to do, they purchased the alarm for my son. It has given us a lot of peace of mind.
I am forever grateful for Danny Did Foundation.
Our daughter was 2 and half when out of the blue at naptime she went into a Grand Mal seizire. It was the most terrifying experience. After squad took her to ER we were set up with a pediatric neurologist. We were set up with an hour long EEG which confirmed she was having seizures. She was started on Keppra and with each seizure the dose was increased. She was having Grand Mals in her sleep and my husband and I would sit bedside taking shifts all night. We were exhausted from not sleeping and seeing our daughter suffer. We were given info about the Danny Did Foundation. They funded us an EmFit Monitor. This has allowed us to finally be able to lay down and shut our eyes at night knowing that we will be alerted when she starts seizing. We can't thank The Danny Did Foundation enough. We are now able to sleep and be rested for her. Thank you from the bottom of our hearts. Our daughter is now 4 and half on 2 seizure meds has a few types of seizures. Has been diagnosed with a heart condition. But she is a very active and happy little girl. Thanks again from all of our family.
Our Son Gabriel had a childhood epilepsy syndrome that left us terrified and exhausted. His seizures often happened at night and could last from 3-15 minutes. Before we had the assistance of Danny Did we were constantly terrified, watching his every move every night. The Danny Did Foundation donated an Emfit Monitor to us and it allowed us to sleep for the first time in months! We cannot say how much their kindness has blessed our lives.
Our son Daniel has had severe seizures since he was 2 months old. For seventeen years he has had to have someone stay in the same room as him at night because so many of his seizures happen at night. They are life threatening and he must have rescue medications very often. The Danny Did Foundation provided us with a camera and sleep monitoring system that often detects seizures even while he's sleeping. This has brought an enormous amount of relief to us as parents. It has also been extremely valuable in watching him while awake in his room. We can give him a sense of independence and privacy, but yet maintain a vigil on him. The camera has detected many seizures already and alarmed so we were able to respond quickly and get him the help he needed. We are so grateful to the Danny Did Foundation for helping to give us this equipment and more peace of mind.
Our son Ryan, who is nine years-old, was diagnosed with generalized epilepsy in December 2015. It has been an uneasy road since, but the gift that this foundation gave us. has allowed us to sleep at night. During the day, we can keep a watchful eye on Ryan. However, nights were tough and go. We initially had a baby monitor, with sound only, to listen for a seizure at night. Unfortunately, this lead to many sleepless nights for us as every noise awoke us thinking it was a seizure. Danny Did donated a camera system to watch Ryan at night. It alarms if it senses any seizure activity. This level of comfort has given my wife and I the ability to feel human again because we are able to sleep again.
My son, Keithan, is 10& has benefited from the help Danny Did provides since he was 4. He has had seizures since 18months of age. Danny Did has given more than help, they've given us moments. Moments I can see my son not be so afraid, moments I can see him spend time with other people just like him at Disneyland Epilepsy Day, moments I can take a deep breath & thank God there is such a fine organization that gives families hope all in the honor of one little boy. Thank you, Danny. Thank you, Danny Did.
The Danny Did Foundation helped us to obtain a seizure monitor for our severely epileptic son Brian. Their services are so important because most people don't realize that epilepsy can result in sudden death. They are a very important organization so that parents like me can do everything in their power to safeguard their loved ones. Please donate generously to these wonderful folks. Let no child's life be taken for granted!
We can never thank the Danny Did Foundation enough for the peace of mind they provided our family. Our son Robbie has severe intractible epilepsy and has seizures multiple times a night. He was sleeping in our bed, we weren't sleeping much at all, for the first almost 2 years of his life. Our Sami Monitor has enabled him to move to his own room, have independent wind down time before bed and stay safe overnight. He sleeps much better and longer alone and we finally have a normal routine!
Danny Did helped us get sleep that lasted longer than 1 hour!!! Thanks to our new Sami monitor we have the piece of mind we need to sleep knowin it will wake us if anything happens. That is somwthing we never though we would have again!
The Danny Did Foundation gave our daughter her independence back. With the Smart Watch, which The Danny Did Foundation provided, she is now able to sleep in her own room again, and spend short periods of time alone for the first time. The watch will alert us to any seizures that she may have. As a teenager, being able to have her independence back has built her confidence. We'll be forever grateful to Danny Did!