The Danny Did Foundation is aggressively spreading knowledge about SUDEP. Even within the Epilepsy community, too few people knew that epilepsy could kill. I have donated personally, referred people, and now am spearheading a fundraiser - I have increased my level of involvement because their mission is clear, their goals and activities are transparent, and they already have a track record of success. This is how a grass roots non-profit should work - making a big difference in a very tangible way right from the start.