I am SO proud of all that APFED has accomplished and continues to do. Our website is a leading source of up to date research and important information for patient community and physicians alike. And the Board, staff, and volunteers truly care about each of our families.
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APFED’s mission is to embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases. It accomplishes this by focusing on advocacy, research, support of families, and education and awareness.
My son was diagnosed with EoE in 1994, long before this patient advocacy group was created to help deal with this disease. I have volunteered for APFED for many years and joined the board recently in part to thank this organization for all of the work they do to help families like mine deal with this rare condition.
I hope that every family that is dealing with one of these eosinophil-associated diseases will find APFED and take advantage of all of the resources they have to offer, including the annual conference. Even though my son had already been living with EoE for many years when I attended my first EOS Connection conference, it and APFED changed our lives.
APFED has been with my family from very early in our journey with Eosinophilic Esophagitis (EoE). The organization provides community and educational materials to families like ours, who are lost and alone at the time of diagnosis. Without APFED advocating on our behalf with government agencies, legislators, hospitals, and pharmaceutical companies, it would even more difficult to manage EoE. We need the outcomes of research that APFED funds; we depend on the legislation mandating coverage of our medical supplies; we lean on our community every day. I'm thrilled to have joined the board of directors so I can contribute to this work.
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APFED is an amazing resource! I don't know how we would manage my son's care without the information base, resources, and community APFED provides. My son looks forward to the annual conference all year--he makes "EoE friends" and I learn about advancements in research that inform our treatment plan. I have raised $35k for APFED because they drive innovative research. We hope for a cure!
A charity with HEART that puts patients FIRST! So grateful our family has this organization to turn to for support and information.
As a mother of a child with EoE I know first hand the need for support and education, not only for my family but everyone we meet. Apfed was there when I most needed to learn more about this disease and encouragement to move forward. The many volunteers that donated time to make sure that I had the necessary resources to be the best advocate for my child was priceless. As a board member I am so very impressed with all the families that I meet that come together to advance the knowledge of this disease and know that dealing with this condition requires support on many levels. Apfed truly lives up to their mission and vision and continues to challenge the community to unite to advance the future knowledge of this disease with the outcome of providing a better quality of life for the families living with this disease.