APFED Reviews

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ksable

My Role: Board Member & Login to send private message

April 10, 2013

APFED’s mission is to embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases. It accomplishes this by focusing on advocacy, research, support of families, and education and awareness.
My son was diagnosed with EoE in 1994, long before this patient advocacy group was created to help deal with this disease. I have volunteered for APFED for many years and joined the board recently in part to thank this organization for all of the work they do to help families like mine deal with this rare condition.

I hope that every family that is dealing with one of these eosinophil-associated diseases will find APFED and take advantage of all of the resources they have to offer, including the annual conference. Even though my son had already been living with EoE for many years when I attended my first EOS Connection conference, it and APFED changed our lives.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

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lmrpeds

My Role: Board Member & Served as board member and annual conference speaker. Login to send private message

June 28, 2011

As a mother of a child with EoE I know first hand the need for support and education, not only for my family but everyone we meet. Apfed was there when I most needed to learn more about this disease and encouragement to move forward. The many volunteers that donated time to make sure that I had the necessary resources to be the best advocate for my child was priceless. As a board member I am so very impressed with all the families that I meet that come together to advance the knowledge of this disease and know that dealing with this condition requires support on many levels. Apfed truly lives up to their mission and vision and continues to challenge the community to unite to advance the future knowledge of this disease with the outcome of providing a better quality of life for the families living with this disease.