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Star Legacy Foundation

Rating: 5 stars   55 reviews 1,992

Address:

11305 Hawk High Court Eden Prairie MN 55347 USA

Mission:

Our Mission The Star Legacy Foundation mission is to increase awareness, support research, education and family advocacy regarding stillbirth. Our Vision We believe there is great hope for the future to prevent many stillbirths in the United States and around the world and we intend to bring this hope to light. We envision that through the utilization of technology, education and grassroots efforts, we can empower parents and families to be an advocate for their unborn babies. We Believeā€¦ Many stillbirths are preventable. Expectant parents should be informed about stillbirth risks and educated on ways to protect their pregnancy. Standard prenatal protocols should include a third trimester ultrasound to identify known stillbirth risk factors and subsequent management through home fetal monitoring when risk factors are identified. A national stillbirth registry should be created with mandatory participation to accurately collect stillbirth data. Stillbirth autopsies should be encouraged and performed consistently with established protocols. Stillborn children should be recognized with a certificate of birth. Families deserve and are entitled to support and guidance when facing the delivery of a stillborn child. Stillbirth, birth injury (cerebral palsy and others), premature birth and miscarriages may have some common denominators - finding answers to stillbirth may enlighten the path to reducing miscarriage, premature birth, and birth injury

Results:

During 2010 the Star Legacy Foundation accomplished a number of organizational goals including the publishing of a cookbook as a fund raising effort, redesign of the website, board development, the 5th annual Golfing for Garrett benefit and more. In 2011 the Star Legacy Foundation developed a stillbirth awareness and prevention campaign "See Me, Feel Me" designed to encourage parents to advocate for their unborn child. (www.seemefeelme.org) In late 2011 the Star Legacy Foundation will host the first Stillbirth Summit bringing together an international panel of independent researchers to share their research efforts and collaborate on moving the stillbirth prevention agenda forward.

Direct beneficiaries per year:

To date the Star Legacy Foundation has donated over $260,000 to the stillbirth research projects. In addition the Foundation held the first ever Stillbirth Summit in 2011; published a Summary of the Stillbirth Summit and is currently conducting a research project - the STARS Study.

Geographic areas served:

Nationwide

Programs:

See Me, Feel Me - Stillbirth awareness and prevention Birth Planning and Companioning International Stillbirth Research Summit Stillbirth Research The Journal of Stillbirth Stillbirth Registry

2016 Top-Rated Nonprofit
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More Info

952-715-7731
www.starlegacyfoundation.org

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Reviews for Star Legacy Foundation

Rating: 5 stars  

1 person found this review helpful

My hospital nurseI referred me to the Star Legacy Foundation after my son was stillborn in 2014. I called the number on their brochure and immediately knew this was an orgaqnization that truly understood my heartache. I was asked if I would like to visit with another mom with a loss similar to mine. I eagerly said yes. Less than two hours later, Lindsey - the Executive Director of the Foundation called me herself. I was amazed that someone as busy as she was still had time to talk to me - just another of the many grieving moms that they must hear from. We talked for over an hour and she reassured me that everything I was experiencing was completely normal and I was not 'crazy' for feeling the way I did and that I was not responsible for my baby's death. I learned that she is a nurse practitioner so she was extremely helpful in helping me to understand why some of the things happened the way they did, what the current research says about cord accidents, and helped me sort out some of the things the doctors and nurses and even my friends and family said that didn't make sense or were hurtful. After that first conversation, I felt like a ton of bricks had been lifted off my chest and I could actually breathe again. And - then she called me back a few days later - just to check in and see how I was doing. We still keep in touch by email on a regular basis and by phone when I just need to talk or have a particular question. She also offered to have another Dad talk to my husband. He was resistant but when this Dad called him they talked for a short time and then met up to have a beer. I saw an entirely new man emerge - he too benefitted so much from just talking to someone who has lived our nightmare. My parents now attend a group for other grandparents and they really enjoy it. I can't say enough for what this organization and Lindsey in particular has done to help us move forward. We attended their run/walk event and were amazed at the volumes of people that came who know the sorrow of losing a child. We are now volunteering as we can and one day hope to be in a place where we too can be there for other families in their darkest hours.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

This group of dedicated individuals is impressive. They have a solid grasp of the issues surrounding the problem of stillbirth and have taken very professional approaches to addressing those issues on behalf of the thousands of families that suffer the loss of a stillborn child. As a loss mom as well as a health professional, I have learn a tremendous amount from them and have the highest regard for the work they are doing. It gives me great hope to know that the medical community is being challenged to do better!

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

The Star Legacy Foundation is an incredibly healing organization. They do all they can to help families personally and to research stillbirth.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

I have had individualized attention from them and immediate responses to questions. They are thorough in what they do and great advocates for us all.

 
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Rating: 5 stars  

2 people found this review helpful

I have watched this organization grow from a dedicated family wanting to make their own loss become the hope for the thousands of families into the largest US organization dedicated to stillbirth prevention. They have become the most knowledgable source of information and resources in the US and are backed by a prestigeous medical advisory team from around the world. This organization is one to watch as they remain steadfast to their vision that one day stillbirth will truly be a rare event. I am proud to support this organization in any way that I can.

 
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Review from Guidestar
Rating: 5 stars  

2 people found this review helpful

So impressed with the incredibly organized, thorough, and efficient manner in which this foundation is run. This team works tirelessly and is making important progress very quickly in areas where no one else is working. If anyone can change stillbirth in this country, it's Star Legacy.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

2 people found this review helpful

This organization does amazing work! They donated money to sponsor a nurses' healing retreat. They even sent speakers and a yoga instructor. They are very involved in our community and are highly respected!

 
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Rating: 5 stars  

2 people found this review helpful

I cannot tell you what tremendous support our family received at the time when our granddaughter was stillborn in 2015. The nurses at the hospital asked us if we would like to have someone who had experienced a loss come and talk to us - we we hesitant at first but decided to say yes. Two lovely women arrived and from that moment on we felt supported in numerous ways. They helped us understand what to expect and what decisions we would be asked to make and what the options were to us. They called another of their team who was a loss grandmother to come and talk to our parents which was so wonderful. They gave us a phone number to call at any time to ask questions or to just vent. Since then we have become actively involved in their work and support their efforts to advocate for awareness, research, education & family support. This organization was truly a saving grace for us at a very vulnerable time in our lives.

 
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Rating: 5 stars  

2 people found this review helpful

The Star Legacy Foundation plays a vital role in advocating for families who have experienced one of the saddest things a family can endure: the loss of a child at an advanced stage of pregnancy.

 
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Rating: 5 stars  

3 people found this review helpful

In 1974 and 1975 I experienced two miscarriages/pregnancy losses in one year. There was absolutely no support for me through this terrible loss. In fact, one of my friends had a still birth of a full term baby the same year and she wanted a funeral for the baby. She was not allowed to do so. Shortly after I began working as a postpartum nurse where I, too frequently, observed nurses and doctors unable or unwilling to comfort woman who experienced various types of losses. I observed this lack of awareness, policies, and services in the medical community for over three decades despite many efforts and initiatives by many. Sadly, there continues to be insufficient public awareness, education, advocacy, and research related to the needs of a bereaved parent and grandparent of a child lost to miscarriage, stillbirth, prematurity or neonatal death. Star Legacy Foundation is doing important work in attempting to address this important need. I have known Lindsey Wimmer, the Executive Director for over 17 years. She is a very capable educator, nurse practitioner, manager, and creative leader.

 
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