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Nonprofit Overview

Causes: Health

Mission: Our Mission The Star Legacy Foundation mission is to increase awareness, support research, education and family advocacy regarding stillbirth. Our Vision We believe there is great hope for the future to prevent many stillbirths in the United States and around the world and we intend to bring this hope to light. We envision that through the utilization of technology, education and grassroots efforts, we can empower parents and families to be an advocate for their unborn babies. We Believeā€¦ Many stillbirths are preventable. Expectant parents should be informed about stillbirth risks and educated on ways to protect their pregnancy. Standard prenatal protocols should include a third trimester ultrasound to identify known stillbirth risk factors and subsequent management through home fetal monitoring when risk factors are identified. A national stillbirth registry should be created with mandatory participation to accurately collect stillbirth data. Stillbirth autopsies should be encouraged and performed consistently with established protocols. Stillborn children should be recognized with a certificate of birth. Families deserve and are entitled to support and guidance when facing the delivery of a stillborn child. Stillbirth, birth injury (cerebral palsy and others), premature birth and miscarriages may have some common denominators - finding answers to stillbirth may enlighten the path to reducing miscarriage, premature birth, and birth injury

Results: During 2010 the Star Legacy Foundation accomplished a number of organizational goals including the publishing of a cookbook as a fund raising effort, redesign of the website, board development, the 5th annual Golfing for Garrett benefit and more. In 2011 the Star Legacy Foundation developed a stillbirth awareness and prevention campaign "See Me, Feel Me" designed to encourage parents to advocate for their unborn child. (www.seemefeelme.org) In late 2011 the Star Legacy Foundation will host the first Stillbirth Summit bringing together an international panel of independent researchers to share their research efforts and collaborate on moving the stillbirth prevention agenda forward.

Direct beneficiaries per year: To date the Star Legacy Foundation has donated over $260,000 to the stillbirth research projects. In addition the Foundation held the first ever Stillbirth Summit in 2011; published a Summary of the Stillbirth Summit and is currently conducting a research project - the STARS Study.

Geographic areas served: Nationwide

Programs: See Me, Feel Me - Stillbirth awareness and prevention Birth Planning and Companioning International Stillbirth Research Summit Stillbirth Research The Journal of Stillbirth Stillbirth Registry

Community Stories

68 Stories from Volunteers, Donors & Supporters

Amy_324

Board Member

Rating: 5

After losing our son, Finnegan, to stillbirth we searched for some sort of community that could help us understand and connect with others in our situation. We were lucky to find Star Legacy where we raised awareness in Omaha, NE and started a walk to honor all babies gone too soon. We were amazed at the amount of people that also wanted to form a community and support system in Omaha. We continue to bring awareness to the community and many other communities in the US. Star Legacy is a great organization that truly wants to end stillbirth through research and guidance. I'm honored to be a part of this organization.

Heather297

Donor

Rating: 5

I have walked in the Star Legacy Walk in Omaha, NE for the past two years and plan on doing it again this year. I walked in memory of my friend's son Finnegan, but also in memory of so many others. This is a wonderful event to honor those precious babies that left us too soon. I was really impressed at how many activites are family oriented luke the childrens fun run abd balloon release.

General Member of the Public

Rating: 5

Star Legacy Foundation is relevant in bringing awareness to families and those touched but those who have been effected. They have a great influence on helping those through difficult times. The members of this foundation are very dedicated and provide tremendous support through their understanding and compassion. In Nebraska, I attended an event called the Stillborn Awareness Walk. They shared their stories of hardship and break throughs and their belief in finding a way to prevent stillborns. This type of dediction is what this communicty needs.

Karen466

Donor

Rating: 5

The support this organization offers to families during a tragedy is immeasurable.

Donor

Rating: 5

Many poeple do not understand the impact that stillbirths have on families and even the extended families. Often times, families are left feeling confused, vulnerable, and lost. Star Legacy has been a wonderful resource and inspiring organization. In Omaha. NE, Star Legacy hosts walk each year that brings families together that have experienced or been impacted by a stillbirth. The organization brought many together and allowed everyone to gain support and share their stories. It has been remarkable and something that my family and I personally look forward to attending each year! The support and friendships that are made through the annual walk is truly remarkable. It is fun for all ages and they manage to choose beautiful locations! It is always ran very smoothly and I hope to be able to get involved more in the future!

Volunteer

Rating: 5

Star Legacy Foundation provides comfort and support to families suffering from the tragedy of stillbirth. After we lost our son Dylan at 33 weeks gestation, we found a community of support through this organization. I have recently started to volunteer with Star Legacy in an effort to get tax credit legislation passed in New York just as the organization had helped influence in Minnesota. I am confident that the research and programs that Star Legacy supports will help prevent some causes of stillbirth in the future.

1

General Member of the Public

Rating: 5

After my sister and brother-in-law's stillbirth, Star Legacy helped our family tremendously. With their help we've learned so much and have felt included in a community. We are grateful that there's an organization out there to help us put our grief to work. For such a common tragedy, there is a shameful level of public knowledge about stillbirths and other painful pregnancy outcomes. There's a lot more work for them to do!

Volunteer

Rating: 5

Star Legacy Foundation provides so many resources to the families its serves and it fills a gaping hole that very few other nonprofits in the U.S. serve - research on stillbirth, pregnancy loss, and neonatal deaths. As a mom to a stillborn daughter, I wanted to help others who are also navigating this unexpected journey and shine some light on this under-researched topic. Star Legacy allows me to do both. Furthermore, the staff and other volunteers are so welcoming and focused on working together for other babies and families.

Lourdes S.

Volunteer

Rating: 5

Star Legacy is doing a great job giving support to families that are going through the loss of their babies. We need to raise awareness and funds for research. Through Star Legacy we can help saving some beautiful lives.

General Member of the Public

Rating: 5

They are doing such great work supporting families at the darkest time. From the smallest details in the hospital to lifelong support. Excellent work!