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Star Legacy Foundation

Rating: 5 stars   45 reviews 931

Nonprofit Issues:

Health

Address:

11305 Hawk High Court Eden Prairie MN 55347 USA

Mission:

Our Mission The Star Legacy Foundation mission is to increase awareness, support research, education and family advocacy regarding stillbirth. Our Vision We believe there is great hope for the future to prevent many stillbirths in the United States and around the world and we intend to bring this hope to light. We envision that through the utilization of technology, education and grassroots efforts, we can empower parents and families to be an advocate for their unborn babies. We Believeā€¦ Many stillbirths are preventable. Expectant parents should be informed about stillbirth risks and educated on ways to protect their pregnancy. Standard prenatal protocols should include a third trimester ultrasound to identify known stillbirth risk factors and subsequent management through home fetal monitoring when risk factors are identified. A national stillbirth registry should be created with mandatory participation to accurately collect stillbirth data. Stillbirth autopsies should be encouraged and performed consistently with established protocols. Stillborn children should be recognized with a certificate of birth. Families deserve and are entitled to support and guidance when facing the delivery of a stillborn child. Stillbirth, birth injury (cerebral palsy and others), premature birth and miscarriages may have some common denominators - finding answers to stillbirth may enlighten the path to reducing miscarriage, premature birth, and birth injury

Results:

During 2010 the Star Legacy Foundation accomplished a number of organizational goals including the publishing of a cookbook as a fund raising effort, redesign of the website, board development, the 5th annual Golfing for Garrett benefit and more. In 2011 the Star Legacy Foundation developed a stillbirth awareness and prevention campaign "See Me, Feel Me" designed to encourage parents to advocate for their unborn child. (www.seemefeelme.org) In late 2011 the Star Legacy Foundation will host the first Stillbirth Summit bringing together an international panel of independent researchers to share their research efforts and collaborate on moving the stillbirth prevention agenda forward.

Direct beneficiaries per year:

To date the Star Legacy Foundation has donated over $260,000 to the stillbirth research projects. In addition the Foundation held the first ever Stillbirth Summit in 2011; published a Summary of the Stillbirth Summit and is currently conducting a research project - the STARS Study.

Geographic areas served:

Nationwide

Programs:

See Me, Feel Me - Stillbirth awareness and prevention Birth Planning and Companioning International Stillbirth Research Summit Stillbirth Research The Journal of Stillbirth Stillbirth Registry

2015 Top-Rated Nonprofit
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More Info

952-715-7731
www.starlegacyfoundation.org

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Reviews for Star Legacy Foundation

Rating: 5 stars  

I lost my daughter to stillbirth 6 years ago. At the time, I didn't even know stillbirth still happened, let alone at such a high frequency. I do know that nobody talked about it, warned me about it, or wanted to talk about it after the fact. I searched online after losing my daughter and didn't find much support. I noticed there were quite a few small groups trying to do something. They were all started by families, not medical professionals, and most of them had a mission related to post stillbirth support. I believe that is important, however, i am a person who wants something substantive. I want data. I want answers. I want education. I want change. When I came across the Star Legacy Foundation website i found what i was looking for. Not only do they have the personal connection to stillbirth, but they also have the medical tie. Not only do they support grieving families after a loss, but they are focused on education and prevention. I reached out and had a long phone call with the founder, and the rest is history. We are friends and I am now on their board of directors and we are growing quickly. We have held two summits, had multiple research and findings published, conducted a research study of our own when data wasn't available, and are actively working to impact change going forward. We are a passionate group that knows we can make a difference. They clearly feel urgency to do it now. The fact that this isn't even their main 'job' is remarkable to me. Thank you Star Legacy Foundation. You have truly changed my life. Because of Star Legacy Foundation, i am able to use my tragedy to help others. Which in turn, helps me. I know we have saved babies! What could be more important than that?

If I had to make changes to this organization, I would...

If the leaders of this group were able to do this full time, i can't even imagine what we could accomplish.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2015

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Rating: 5 stars  

1 person found this review helpful

I had not heard of the Star Legacy Foundation until they reached out to us after we lost our son, Jack, when I was 37.5 weeks pregnant. The loss of our son was completely overwhelming - from not understanding what went wrong, to being asked about performing an autopsy, to being told I'd be planning a funeral and asked if i want to hold our son or have pictures taken. to being induced and delivering our son.

The Star Legacy Foundation's mission is to increase awareness, support research, promote education and encourage family advocacy.

I wish I had the information regarding still birth, warning signs, etc prior to my last pregnancy. I am currently pregnant, and the Star Legacy Foundation provided articles regarding pregnancy monitoring and a Dr Collins - who focused on reducing loss due to Umbilical Cord Accidents (UCA). This information has helped me with knowledge to more efficiently advocate for myself, my child and our care. I can't thank the Star Legacy Foundation for all their support in the loss of our son and the opportunities to get involved, help spread awareness and recognize our children who were lost too soon!

Megan - Minnesota, MN

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Rating: 5 stars  

1 person found this review helpful

Star Legacy Foundation has been such a wonderful support and help after losing my triplets. Not only have they helped me connect with other loss families, resources and research through their Stillbirth Summit but they've become my fiscal sponsor for the mission I give to in memory of the children I've lost; baby loss memory boxes and teddy bears.

https://blessedwithmore.wordpress.com/2013/09/07/baby-loss-memory-boxes/

I'm honored to call them friends as well as allies to help others who are hurting after the loss of a child. I applaud all they do to attempt to prevent these tragedies from happening through awareness efforts and continued research with doctors and researchers from around the world.

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1 previous review
Rating: 5 stars  

1 person found this review helpful

Star Legacy Foundation is not only an amazing resource for families who have faced a loss through their fiscal sponsorship of organizations such as 11 Angels and my own project, Blessed with More (providing memory boxes and bears for baby loss families), they also create the missing link for medical professionals and researchers to help prevent stillbirth and infant loss. They've been not only a resource for managing my donations but also a friendly ear to listen and lend advice as I navigate the rough road of grieving the loss of my children.

If I had to make changes to this organization, I would...

Encourage more medical professionals to get involved to improve the link between volunteers, information and getting their help to those who need it most.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

My wife and I lost our daughter in 2008. We were never given a cause of death. Star Legacy Foundation connected us to a community of medical experts and supporters who understand the years of grief and struggle we have experienced while giving us hope that we can change this outcome for future babies.

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Role: Client Served
Rating: 5 stars  

2 people found this review helpful

Our daughter and son in laws first son was born still at 35 week and a normal healthy pregnancy. As grandparents, we wanted to learn more how this could happen and how it could be prevented going forward. We found Star Legacy one of the few stillbirth organizations that deal with education and research. We called them several times to ask questions to better understand some medical terms. They were supportive and responsive. It also helps that the director is a nurse, as well as a mother of a baby born still. They also have many well written articles on their website to give families and parents information. we are glad they were there when we needed them and will continue to support them in the hope that along with their help there will be greater research and discussion about stillbirths and there will be less and less families having to have a stillborn baby.

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Rating: 5 stars  

1 person found this review helpful

As a mother of a stillborn baby I am so thankful for the work that Star Legacy is doing to increase awareness of stillbirths, do important research, and provide support to families and those who are impacted by the loss of a baby. After we lost our son at 34 weeks gestation we began looking into organizations who could provide support and change and Star Legacy has been able to do just that. Currently, we are organizing a 5K to honor our stillborn son, raise awareness, and money to fund research and all of the proceeds are going to Star Legacy because we feel that they will be able to make the most of this money. We can't thank Star Legacy enough and are hopeful that they will continue to make a huge difference in raising awareness and funding research so we can better understand and decrease the amount of stillbirths so that other families do not have to experience this devastating loss.

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Rating: 5 stars  

1 person found this review helpful

As a mother who had a stillborn child. I really appreciate the work that Star Legacy Foundation is doing. Working closely with the SLF administration, I know first hand the passion and drive they have to educate people about Stillbirth. I am proud to represent such a great organization as Mrs. New York International 2015

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Rating: 5 stars  

1 person found this review helpful

After the loss of our son, my wife and I were looking for people who wanted to prevent these losses. Star Legacy Foundation was exactly what we were looking for. They were very helpful and tried to answer our questions the best they could. It is wonderful to see an organization doing something to help our babies.

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Rating: 5 stars  

1 person found this review helpful

We lost our much awaited and loved granddaughter in November of 2014. She was stillborn at birth from an ambilical cord accident. Our family was devastated and didn't know which way to turn. A co-worker told me about the Star Legacy Foundation and I contacted them. Within a day a representative came to my home and asked me to tell my story. She then provided me with resources for education and emotional support. Many of the positive steps that me and my family have taken in the healing process have been thanks to the support from Star Legacy. We so appreciate their role in our lives and in the community.

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Rating: 5 stars  

1 person found this review helpful

My son and his wife lost a daughter, at birth, last November. Star Legacy Foundation has been extremely supportive to them, and to the rest of my family, during this very difficult time.

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