Star Legacy Foundation

Rating: 5 stars   33 reviews

Issues: Health

Location: 11305 Hawk High Court Eden Prairie MN 55347 USA

Mission: Our Mission The Star Legacy Foundation mission is to increase awareness, support research, education and family advocacy regarding stillbirth. Our Vision We believe there is great hope for the future to prevent many stillbirths in the United States and around the world and we intend to bring this hope to light. We envision that through the utilization of technology, education and grassroots efforts, we can empower parents and families to be an advocate for their unborn babies. We Believeā€¦ Many stillbirths are preventable. Expectant parents should be informed about stillbirth risks and educated on ways to protect their pregnancy. Standard prenatal protocols should include a third trimester ultrasound to identify known stillbirth risk factors and subsequent management through home fetal monitoring when risk factors are identified. A national stillbirth registry should be created with mandatory participation to accurately collect stillbirth data. Stillbirth autopsies should be encouraged and performed consistently with established protocols. Stillborn children should be recognized with a certificate of birth. Families deserve and are entitled to support and guidance when facing the delivery of a stillborn child. Stillbirth, birth injury (cerebral palsy and others), premature birth and miscarriages may have some common denominators - finding answers to stillbirth may enlighten the path to reducing miscarriage, premature birth, and birth injury
Results: During 2010 the Star Legacy Foundation accomplished a number of organizational goals including the publishing of a cookbook as a fund raising effort, redesign of the website, board development, the 5th annual Golfing for Garrett benefit and more. In 2011 the Star Legacy Foundation developed a stillbirth awareness and prevention campaign "See Me, Feel Me" designed to encourage parents to advocate for their unborn child. (www.seemefeelme.org) In late 2011 the Star Legacy Foundation will host the first Stillbirth Summit bringing together an international panel of independent researchers to share their research efforts and collaborate on moving the stillbirth prevention agenda forward.
Direct beneficiaries per year: To date the Star Legacy Foundation has donated over $60,000 to the stillbirth research projects. In addition the Foundation held the first ever Stillbirth Summit in 2011; published a Summary of the Stillbirth Summit and is currently conducting a research project - the STARS Study.
Geographic areas served: Nationwide
Programs: See Me, Feel Me - Stillbirth awareness and prevention Birth Planning and Companioning International Stillbirth Research Summit Stillbirth Research

2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

I am a bereaved mom, a stillbirth researcher and a communication educator. What Star Legacy Foundation -- run by a mom and a grandmom of a stillborn baby -- consistently does is bring together stakeholders from the community and institutions in the same room to try to make a difference in how we talk about, care about and take action about the deaths of our wanted babies. It isn't often that people who have been diagnosed get to speak with those trying to figure out what causes the diagnosis and those who deliver the news of the diagnosis.



If I had to make changes to this organization, I would...

...get them more funding and support to get governmental agencies to the table.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

I am honored and humbled to serve on the Board of Directors of this incredible organization. The Star Legacy Foundation is one of the most organized, forward thinking non-profits I have ever been part of. It truly strives to make a difference to find solutions to save babies, educate women, and prevent stillbirth from happening. They truly are on a mission to educate others, work with researchers on prevention studies, and really just save babies. They are also a very compassionate group that work hard not only to help others but to honor all of those babies who have been lost to stillbirth. As a stillbirth parent myself, this is a wonderful group to belong to because they just "get it." They are fantastic stewards of every single penny they receive and I will continue to work with them because I believe in the work they are doing. They are saving lives, mostly by women who don't even know how close they came to losing their baby.

If I had to make changes to this organization, I would...

only find ways to increase exposure in the medical community because their work is so very important and yet, the Star Legacy Foundation is not always getting the support visually, financially, literally, medically, or respectfully that they deserve.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

After losing my son in September. I wasn't sure where I could turn. Or how I could be proactive to advocate for my sweet boy. The Star Legacy Foundation took me under their wings. They provided so many resources to help me heal. I am forever grateful. I met with the best researchers from all the corners of the world. Together we are working together to help end stillbirth.

If I had to make changes to this organization, I would...

I only wish there was more awareness for this nonprofit. They provided such great care to me and my family.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

Star Legacy is founded on a passion for making a difference in the lives of so many people, and are dedicated to pursuing and supporting research and education around the tragedy of stillbirth.

If I had to make changes to this organization, I would...

Give it more money!

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I only discovered this organization a few months ago when I began hearing about the Stillbirth Summit in support group. A recently bereaved mother, I decided to take time off from work to attend and see what I could learn. One of the best decisions I've made! The excellence and caliber of the summit was stellar. World-class physicians and researchers presented on topics ranging from pathology, to placental health, to emotional support for grieving families... Simply an amazing event, very well planned and executed, and I can't wait for the next one. I'm also inspired to volunteer and see how I can help. I can't say enough good things about Lindsey and Shauna!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

This foundation is committed to the research and education of stillbirth and the support of those effected by stillbirth. They are not motivated by money or attention. Their interest lies in answers and reduction of stillbirth. The compassion and energy are second to none.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I finally found an organization to volunteer with that was in line with my missions as a bereaved parent. To be surrounded by other parents and families on that same mission is a very powerful thing. I believe we will make a difference and change the lives of families who have experienced a stillbirth, those who will someday have to endure a stillbirth, and for families who will never know what a stillbirth is like due to our commitment to prevention!

If I had to make changes to this organization, I would...

Make sure everyone knew about this wonderful organization!!!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I feel extremely fortunate to have met both Shauna and Lindsey in 2012 at the International Conference for Stillbirth, SIDS, and Infant Survival. They are two very smart, very passionate, and very driven women. They have been very successful at building an organization that is bringing about change. I am honored to have the opportunity to work with them and can't wait to see what the future holds.

Will you volunteer or donate to this organization beyond what is required of board members?

Likely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

1 person found this review helpful

My wife and I have gone through two stillbirths and a miscarriage. Stillbirth is a difficult topic to talk about. It's a difficult challenge for medical providers to tackle both from a science and patient care standpoint. The work that Star Legacy does helps share research, create awareness, start conversations, increase the quality of care, and it gives families of stillborn babies a community of support and love. My wife and I are so thankful for their work and support. They are helping us create awareness in our community by supporting the Mary-Alice & Friends 5K for Stillbirth Research and Awareness, an event named after our daughter who was stillborn in 2008. They are an amazing organization with caring and very smart people.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

Star Legacy is an amazing organization! They REALLY care about you and your baby. They reach al area when someone has a stillborn. They know where to send you, what to say and genuinely want to help! I feel star legacy wants to only prevents stillborns and help where they can! They are in it to reach people all over! I had a baby stillborn over a year ago and I help star legacy wherever I can! I am now pregnant with my rainbow baby and they have been there every step of the way!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

Star Legacy and 11 Angels is a fabulous organization! What they can do for families that have lost children is wonderful. Helping council families in need. Letting others know that have been there before. Bring bags from 11 angels to families to help in remembering their child for life with little memories. Just knowing someone is out there for you is wonderful!
I lost my son Silas December 8th and I have really enjoyed comparing stories and being part of a group that totally gets me and understands! I thank Star legacy and 11 angels everyday that i have found them. Only doing good for others!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful?