National MS Society Mid-Atlantic Chapter

Rating: 3 stars   2 reviews

Issues: Health, Cancer

Location: 9801-I Southern Pine Blvd Charlotte NC 28273 USA

Mission: The Mid-Atlantic Chapter of the National Multiple Sclerosis Society is a community of individuals who want to achieve a world free of MS. The Chapter is committed to the philosophy of wellness, offering those living with MS the encouragement, materials and skills necessary to achieve and maintain meaningful, productive lifestyles. Founded in 1955, the Chapter helps over 8,000 individuals in western North Carolina and the state of South Carolina impacted by MS. We provide comprehensive support services and educational programs to people with MS, their family and friends, and raise money to fund cutting edge research into the cause and cure of multiple sclerosis.
Target demographics: Everyone affected by multiple sclerosis (MS) living in South Carolina or western North Carolina
Direct beneficiaries per year: More than 8,000
Geographic areas served: South Carolina, western North Carolina
Programs: The Chapter provides direct services for people living with MS, including emergency financial assistance and employment, financial planning, information and referral, and service management resources. MS Service Days connect volunteers with people living with MS for a day of home repair and visitation, while the brand-new Friendly Visitor Program sends volunteers to visit patients with MS living in long-term care facilities. Chapter-supported Self-Help Groups allow people living with MS to learn from others sharing the same struggles. In addition to direct services, the Chapter hosts teleconferences, including monthly educational phone conferences and quarterly conferences for people newly diagnosed with MS. The Chapter also sponsors educational conferences, retreats for families / children / couples living with MS, wellness programs and trainings, and a scholarship program for children either living with MS or having a parent with MS. The Chapter also raises awareness of multiple sclerosis through local, state and federal advocacy opportunities and by working with healthcare providers to educate them about the challenges of managing patients with MS.

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Community Reviews

Rating: 1 stars  

I almost lost my house. This disease has robbed me of many things. I wasn't about to let it have my home. I turned to the society for help and received a form in the mail that no normal, let alone one with cognitive issues, could possibly fill out. Not sure why it was made so difficult other than to turn people away from seeking financial help.

I've personally experienced the results of this organization in...

Now way whatsoever.

If I had to make changes to this organization, I would...

Start spending more of that income on us folks with the disease and less on giving yourselves raises and new furniture.

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Rating: 5 stars  

8 people found this review helpful

I started volunteering with the Mid-Atlantic Chapter of the National MS Society as a way to help one of my best friends who was diagnosed with MS. She lives in Texas and it was hard for me to be able to help her from so far away. I called the local chapter and spoke with Linda Vanderbosch(who is a saint!)and she helped me get started. Now my whole family volunteers for these events. I now have lots of friends with MS or loved ones with MS. It is one of the greatest experiences. I can never thank the staff enough for letting me be a part of something so special and FUN! I am not very good at putting things into words,so I hope this is some way lets people see what they are missing out on! Thank you, Prue Rodriguez If you never did, you should. These things are fun and fun is good! Dr. Seuss (1904 - 1991)

I've personally experienced the results of this organization in...

The way it helps people in the chapter area. With service day and with getting info to people suffering with MS and their loved ones. And by getting the word out. Knowledge is a powerful thing.

If I had to make changes to this organization, I would...

Love to see everyone more often! And make sure there are enough small t-shirts...More mICHELLE!

What I've enjoyed the most about my experience with this nonprofit is...

the joy of cheering on the walkers and bikers.

The kinds of staff and volunteers that I met were...

The most amazing people!

If this organization had 10 million bucks, it could...

Help so many!!!!!!!!

Ways to make it better...

n/a

In my opinion, the biggest challenges facing this organization are...

It is hard to get money in tough economic times.

One thing I'd also say is that...

It is filled with an amazing staff of people. Some are gone now(and are greatly missed).

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-6-01

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