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Phone: 888-349-1167
2000 L St, NW
Suite 732

Washington
District of Columbia 20036
USA
Website

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Geographic areas served: DC, MD, VA, WV

Programs: *LFGW hosts various educational workshops throughout the year. These include a full-day Symposium for patients, families and friends affected by lupus. We also run several Newly Diagnosed Patient Workshops throughout the year, and offer one topic Lupus Lectures when needed.

*LFGW offers printed materials that include information about the various types of lupus, its symptoms, and available treatments and medications.

*LFGW maintains a website that provides current information on lupus.

*LFGW maintains an up-to-date list of physicians in the Washington, Virginia, Maryland and West Virginia area that includes lists of the different types of Doctors that treat lupus patients.

*LFGW hosts regularly scheduled support groups that meet in various locations throughout the Greater Washington, DC area. An approved and trained counselor facilitates each support group.

*LFGW runs an E-mail buddy program. Many lupus patients can become isolated and housebound, so we administer a program to allow lupus patients to have an understanding and knowing person to communicate with from home, through email on everything from symptoms, to medications, to emotions and frustrations.

*The foundation makes presentations to different organizations including schools, and volunteer groups.

*LFGW provides support and services to individuals who contact us via the phone or the internet. We provide these individuals with information and advice, and we make them aware of additional resources that they could turn to.

*LFGW also delivers a quarterly newsletter that provides information on new drug treatments, changes in disability requirements and offerings, and a variety of other topics that impact those affected by lupus.

Mission:
The Lupus Foundation of DC, Maryland and Virginia is dedicated to finding the causes of and cure for lupus and providing support and services to all people affected by lupus.
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16 Reviews
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Average rating:
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03/19/12
This organization is now known as Lupus Foundation of America-DC/MD/VA Chapter. Not sure where to begin with the cons of this chapter. Please note that the majority of reviews online at this site is written by either former or current staff or board members. To an outside bystander that should be... more »
05/16/11
There appears to be a lot of turnover at this organization which is disconcerting. The only long serving person is the CEO- the staff that works directly with patients seem to come and go. Makes you wonder what is going on... more »
03/25/11
I want to caution people about this organization now known as the Lupus Foundation of America-DC/MD/VA Chapter. This organization does a decent job in offering some programs for lupus patients- mainly support groups and educational workshops. However for an organization whose budget is over $700,... more »
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