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Lupus Foundation of Greater Washington
March 25, 2011

I want to caution people about this organization now known as the Lupus Foundation of America-DC/MD/VA Chapter. This organization does a decent job in offering some programs for lupus patients- mainly support groups and educational workshops. However for an organization whose budget is over $700,000+ a year the programs doesn't reflect the money they raise.

It's a bit like seeing how sausage is made- once you do you're unlikely to like sausage. This group has nice friendly staff but trust me when I say donations are not properly managed or utilized. Money is wasted on a consistent basis.
Lupus patients need help for sure but for a better return on your donation consider giving to ALR- alliance for lupus research or LRI- lupus research institute or the S.L.E Foundation. (i'm not affiliated with these groups)

The Great!

I've personally experienced the results of this organization in...

DC-MD-VA. For the handful of people that attend the support groups the help is appreciated. Most people are helped via podcast and teleseminars on line. How much money is needed for that?

Ways to make it better...

If I had to make changes to this organization, I would...

offer patients technical assistance with their lupus. Help them connect the dots to resources in their area. Offer programs other than workshops. Expand presence in MD and VA.

More feedback

Would you volunteer for this group again?

Unlikely

For the time you spent, how much of an impact did you feel your work or activity had?

A little

Did the organization use your time wisely?

Somewhat badly

Would you recommend this group to a friend?

Unlikely

What one change could this group make that would improve your volunteer experience?

improve communication throughout the process.

MY ROLE:
Volunteer & help with various events and projects.