Global Foundation For Peroxisomal Disorders
Rating: 0 stars 0 0 review 33
5147 S Harvard Ave Suite 181 Tulsa OK 74135 USA
The mission of the global foundation for peroxisomal disorders is to help children and families faced with a peroxisome biogenesis disorder-zellweger spectrum disorder (pbd-zsd) diagnosis and to assist family members and professionals through educational programs, research, and support services.
2014 gfpd scientific symposium- gathering of scientists and physicians to discuss treatments for pbd-zsd.
family support services- included grants for travel expenses for families to travel to omaha, nebraska to take part in clinical trial of the fda approved drug betaine.
medical and scientific research grants
equipment exchange program- provided shipping costs for families exchanging medical equipment
miscellaneous expenses: advertising, office expenses, information technology, insurance, and fundraising expenses
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I've had the opportunity to meet and work with Joy in the Cause first hand over the past few months. As soon as I met Lisa and... more »
Judi Grove is one amazing lady! She is an inspiration to me and so many others, working tirelessly to help raise money and awareness... more »
Ann I. wrote:
EXTREMELY helpful. My family so appreciates the hope this group has given and the information to help with questions to ask... more »
I have had the pleasure of partnering with this organization recently. The staff that I have had regular contact with provide... more »
Great organization with a staff that truly cares about assisting people with disabilities! more »