Global Foundation For Peroxisomal Disorders
Rating: 0 stars 0 0 review 33
5147 S Harvard Ave Suite 181 Tulsa OK 74135 USA
The mission of the global foundation for peroxisomal disorders is to help children and families faced with a peroxisome biogenesis disorder-zellweger spectrum disorder (pbd-zsd) diagnosis and to assist family members and professionals through educational programs, research, and support services.
2014 gfpd scientific symposium- gathering of scientists and physicians to discuss treatments for pbd-zsd.
family support services- included grants for travel expenses for families to travel to omaha, nebraska to take part in clinical trial of the fda approved drug betaine.
medical and scientific research grants
equipment exchange program- provided shipping costs for families exchanging medical equipment
miscellaneous expenses: advertising, office expenses, information technology, insurance, and fundraising expenses
Filter Reviews by Role
Promote This Nonprofit
GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!
Reviews for Global Foundation For Peroxisomal Disorders
Get discovered. Invite people to share their experiences about this nonprofit!
Judi Grove is one amazing lady! She is an inspiration to me and so many others, working tirelessly to help raise money and awareness... more »
Ann I. wrote:
EXTREMELY helpful. My family so appreciates the hope this group has given and the information to help with questions to ask... more »
I have had the pleasure of partnering with this organization recently. The staff that I have had regular contact with provide... more »
Great organization with a staff that truly cares about assisting people with disabilities! more »
Ask Jack wrote:
A superb organization...prved exemplanary crefor idependent living, skilled nursing, assisted living and dementia care . Absolutely... more »