LMSdr has been a tremendous source of information, support, guidance, and realistic hope since I was diagnosed with this rare and aggressive cancer about a year ago. It hosts a wonderful worldwide FB page for people and their loved ones who have this diagnosis. It is well monitored and a tremendous source of information and support. LMSdr does everything possible to help people find a cure for this rare cancer, including identifying scientific research projects for financial support, helping people host fundraisers, organizing a tissue bank and blood samples for research purposes, hosting seminars, providing recordings of past seminars, the list goes on and on. I have contributed greatly to LMSdr, and have encouraged friends, colleagues, and relatives to do likewise. A tremendous percentage of what LMSdr collects goes directly to LMS research. Their expenses are low as the organization is completely volunteer-run. I simply cannot praise LMSdr enough!
EXTREMELY helpful. My family so appreciates the hope this group has given and the information to help with questions to ask doctors.
Talk about good information! This foundation helps and shares with those of us who have unluckily needed the Support! The group is on top of the newest treatments out there and ready to share.
I was diagnosed with leiomyosarcoma. I couldn't pronounce the word let alone know what it was. My oncologist kept looking down at the report & back to me with terrified eyes. I heard RARE, AGGRESSIVE, FAST GROWING. The Internet was terrifying. Statistics were low and there seemed not much hope. But then I found an online group that offered support, encouragement, recommendations, hope...a light in a dismal place. LMSdr has been my rock. This rare cancer gets very little funding or recognition like other well known cancers. All donations to LMSdr go directly to research on our own cancer to help find better treatments and eventually a cure. The logo is "Working not Wishing".
Lmsdr is a haven in a storm. The information shared by individuals is more powerful than any source. Collective knowledge and experience. Factual medical information. Love and caring support. You can't ask for more.
I’m a leiomyosarcoma caregiver and a donor to LMSDR. Leiomyosarcoma is a rare cancer that until not too long ago I’d never heard of. This disease needs more research but its not that big of a “market”. LMSDR channels donations directly to researchers, and it provides a place for us to share experiences and compare notes. Its a very deserving cause. Thanks LMSDR.
Without LMSdr - I can't fathom what my life would be like. The information and support given is unparalleled.I was given old statistics and antiquated answers from local oncology team. LMSdr put me in touch with others who gave me good information/real information- referrals - and hope.
LMSDR is a lifesaver! I find information and support at my fingertips. I can go through their website, facebook group, or monthly e-letter to keep up with the latest research and treatments. The facebook group and retreats are a great way to meet other survivors and get support. It's easy to donate, since they are also signed up with groups such as Igive and amazon smiles.
Alone and in shock no more! The LMSDr community has uplifted my sagging spirits, provided valuable education to me and 1400+ other LMS patients on latest trials and procedures and allowed me to share my treatment experiences so that others may learn from me as well. Sharing and caring, together we are stronger because of LMSdr. Patient and volunteer.
The information and support is so helpful. In more ways than one, LMSdr has been a life saver.
LMSdr has been my lifeline to the community of people living with leiomyosarcoma, a rare and aggressive cancer. LMSdr's first priority is fundraising to support research into this rare cancer. But its other functions have personally benefitted me the most. LMSdr sponsors a very active Facebook page, where those of us suffering from this rare disease can come to know and support each other. It hosts an informational website and newsletter to keep us current on the latest research & developments. And it sponsors retreats!