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Nonprofit Overview

Causes: Brain Disorders, Cancer, Health

Mission: The mission of the Brain Tumor Foundation for Children is to provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected.

Results: In the 2012 fiscal year (7/1/11 – 6/30/12), we provided $360,000 in emergency financial assistance for 300 families in the southeast through our Butterfly Fund. Since being established in 2000, this one program has provided over $1.8 million in assistance for hundreds of families – helping with items that include rent and utilities, car payments and repairs, gasoline, treatment-related travel expenses, and much more. We will continue to “Help Families Cope,” as long as needed through this and other programs that are described on our website.

Target demographics: Families of children aged birth through 21 years in the southeast who have brain and spinal cord tumors.

Geographic areas served: Southeast

Programs: The Brain Tumor Foundation for Children provides a financial assistance program (Butterfly Fund) for the families of children treated for the disease at certain hospitals in eight southeastern states (GA, FL, LA, MS, AL, KY, SC, TN); it provides information and education for families; it provides hands-on support to families (mostly in the state of Georgia); it supports research for a cure.

Community Stories

32 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

For the families and children who are fighting Brain Cancer you can't beat this organization! Resources for financial help, gatherings of the families that keep us all bonded with special event activities, information and comfort for any situation,and staff that has always been there when we needed someone to listen. We couldn't have made it this far with out you! Thank you! \
Olivia diagnosed with two brain tumors at age 4.5 (2008), grew a new one in 2012 and a strong survivor!

Client Served

Rating: 5

In July of 2010 my daughter was diagnosed with a brain tumor. We were completely lost! At this point our lives were changing so quickly! Within three months I was no longer able to work, my daughter needed me to be with her. After three years we continue to fight! Our fight would not be possible without the Brain Tumor Foundation for Children! There are times that we feel like we have the weight of the world on our shoulders trying to fight with our daughter, but, one thing we have never had to worry about it loosing our home or having no electricity or gas money to make it to our 200 mile car trips to the doctors that can help our daughter. But, most important are the days that we just needed to have someone to talk to and those are the days that you can call the foundation and they know you by name and your child and your situation. It is an organization that we have been so very blessed to have! I wish that I had the words to express our gratitude!!!

Laura175

Client Served

Rating: 5

My family would be very lost if it weren't for this foundation. They went over and beyond anyone else could have to help my family and I. My daughter loved receiving mail that was very enthusiastic and kept us going.

Board Member

Rating: 5

The Brain Tumor Foundation for Children is a small group with a huge heart. I feel that the compassion this group has for the children and their families fighting brain cancer is unmatched. One of their main objectives is to provide emergency financial assistance to familes to help them during a very difficult time. They also provide information, networking, and social events for the children and families. J. Smith Lanier & Co. has been a fundraising partner for BTFC for almost 10 years. Working with the foundation has become part of our corporate culture.

Client Served

Rating: 5

This foundation is very proactive in reaching out to families. Their presence is felt in the hospital and brain tumor clinics here in Atlanta. They work with other organizations to bring together meaningful resources to families. They are such a blessing to my son. He has had his brain tumor since birth. He has endured two surgeries. Because of the surgeries good brain tissue was sacrificed to fight this tumor. After all the pain and disappointments, It's such a joy to have an organization that loves on our children and supports the parents. The Brain Tumor Foundation for Children in their excellent way helps to quiet the hurt of fighting these tumors for our children.

Volunteer

Rating: 4

You may have seen the documentary on Dr. Stanislaw Burzynski who has great success with children with brain tumors. He practices out of Houston, Texas. His anti neoplastons are amazing medicine. They have a much better success rate than traditional radiation with virtually no side effects.

1

Client Served

Rating: 5

My daughter was diagnosed with a brain tumor at 19 y/o on 29 Jul 12. They do not know how long she's had it. She had two surgeries to remove the tumor and she is currently going through radiation therapy then on to chemotherapy. She has an 11 month old son. Through my social worker the foundation has provided us with $350 in gas cards as we have had to travel back and forth at least once every two weeks for two hours for her doctor appts. Without the foundation we would be hurting as I nor my daughter are currently working; since I have exhausted all of my leave from work being by her side. We also are struggling to get her disability approved so the foundation is truly a God sent organization. They are willing to help with bills, car repairs, etc. if you just ask. We are truly grateful and thankful for God and him providing donors with such caring hearts. I am sure other families are just as grateful.

Client Served

Rating: 5

This past year out daughter was diagnosed with a rare brain tumor. Immediately the foundation reached out to us offering support in a number of ways. It was assuring to know we were not alone in this battle. Our daughter is admist receiving treatment and the foundation has reached out to our family and older daughter.

Client Served

Rating: 5

December of 2007 i received a call while my child and i were at st jude.The lady i spoke to was so kind sweet and thoughtful was as if a family member had called to offer help.Was a great burden lifted the finacial support was just the begining , they would call and check on us regularley they even sent my other child a gift for the holidays .And when i lost my son they send a gift i keep it in a special place so thankful for all they have done an do each day may god bless the btfc and as long as i walk this earth you'll have my support thank you.

Patrice E.

Donor

Rating: 5

In July 2005 our neighborhood of Decatur, Georgia lost one of our beloved children to pediatric brain cancer. Ian was a bright, vigorous, athletic 15-year old with a passion for skateboarding. After his death, friends and neighbors came together to raise money for the devastated family through a neighborhood festival called SkaterAid. The money we raised that year meant a lot, but the real power of the event was the healing it brought to Ian's family and friends. This year we celebrated our 8th SkaterAid. We continue to donate every dollar to the Brain Tumor Foundation for Children, who uses these funds to pay bills for families struggling with this disease. The people at the BTFC are truly the most caring, wonderful people you could ever hope to meet. SkaterAid is an anuual event, but we are proud to play a part in the work the BTFC does every single day of the year.