My Nonprofit Reviews
Jo B.
Review for Nevada Center for Biomedical Research, Reno, NV, USA
Previously in excellent health, I was diagnosed in UK with myalgic encephalomyeltis (aka chronic fatigue syndrome) in 1992, was told there was no treatment for it and that it would work its way out of my system in about a year. 19 years later I still have ME and there is still no treatment for it. I had to give up work due to the level of disabilty it caused, as it affects almost every organ and system in the body. It is a most insidious disease with devasting effects on health, life-style and livelihood. ME is indiscriminate - anyone can get it, including children as young as 2 years of age. It is heartbreaking that children and young people lose their lives to this disease yet no public funding is provided for biomedical research to find root cause and treatment. I totally trust the dedication and integrity of Whittemore Peterson Institute - their only vested interest is in finding cure(s) for neuro-immune disease. It was set up because the founders' daughter has ME so what better motivation could an organisation have to persevere and succeed? WPI has my full support and gratitude for giving millions world-wide hope for a cure at long last, through its ground-breaking research and now moving on to translational research with the prospect of treatment if it can get the necessary funding.
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I've personally experienced the results of this organization in...
I monitor the developments in WPI's research and will glady take part as a test subject if required. I believe that WPI is our best hope for a cure for ME and other neuro-immune diseases.
If I had to make changes to this organization, I would...
have them receive government funding for their work. The biomedical research they are doing is so long-awaited - for decades now - by so many in US and around the world.
