My Nonprofit Reviews
Uptown
Review for The Oral Cancer Foundation, Santa Fe, NM, USA
I began this journey July 18, 2003. There is so much to learn and the medical community doesn't manage the side effects of treatment well. Through the Oral Cancer foundation, I have met thousands of people and almost all of them have had suggestions as to what worked best for them. Because of the randomness of recovery, this information proved valuable to me back then and continues to.
I believe the Oral Cancer Foundation provides the most science-based evidence possible to help disseminate all the complexities of treatment.
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If I had to make changes to this organization, I would...
Provide unlimited funds.
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2014
Review for The Oral Cancer Foundation, Santa Fe, NM, USA
As a 10 year survivor of oral cancer I must say that this journey was made much more tolerable thanks to the OCF community. Not only providing the most accurate, science-based information on any aspect of oral cancer, OCF is diligently educating dental professionals in techniques and information sharing to strengthen the front line battle against this life changing disease.
In addition OCF has provided an on-line community of approximately 9,000 registered users that are either oral cancer survivors, family and/or caregivers with hands on experience in dealing with the diagnosis through post-treatment issues.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
Review for The Oral Cancer Foundation, Santa Fe, NM, USA
I found OCF while recovering from treatment for Stage IV Squamous Cell Carcinoma, BOT in 2003. I have met many people that have or will experience the complexities of treatment and the brutality/toxicity that brings with it new challenges. OCF is not only a community of survivors and caregivers but the most informative site for all facets of oral cancers.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
Review for The Oral Cancer Foundation, Santa Fe, NM, USA
When I was diagnosed with Stage IV Oral Cancer in 2003 my life changed and honestly, it has not stopped changing. I have yet to find my "new normal" as we call it. I became active on the forums that were provided by the Oral Cancer Foundation and met literally thousannds of people that had experienced pretty much the same thing as me only with personalized time frames. As trite as it may sound, I don't know how I would have made it to where I am today without the resources, the friends and the incredible website Brian Hill self-funded to start it up. I go to Health Fairs and represent the Oral Cancer Foundation and if I was in a little better health presently, I would be organizing a walk to raise money during Oral Cancer Week next April.
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I've personally experienced the results of this organization in...
Bringing people from all over the world to one place that is the singlemost comprehensive resource website for oral cancer as well as providing a place where hundreds walk through the cancer journey with you, letting you know what is around the corner.
If I had to make changes to this organization, I would...
...not change a thing!
What I've enjoyed the most about my experience with this nonprofit is...
The tenacity of Brian Hill and how he singlehandedly made this happen with hundreds of thousands of dollars out of his pocket to promote early detection which increases your chances of survival from 25% to 90%.
The kinds of staff and volunteers that I met were...
Incredibly devoted to helping people with this horrible disease and willing to put in the hours needed for nothing in return, monetarily.
If this organization had 10 million bucks, it could...
Reduce the death rate of oral cancer significantly. In addition, more research could be directed towards early detection and treatment alternatives.
Ways to make it better...
Brian Hill had an entire staff instead of an army of one for so long and financial backing.
In my opinion, the biggest challenges facing this organization are...
The low incidence rate of oral cancer versus breast cancer, for example. It is hard to fund and support groups that are trying to get the word out on early detection and keep up with treatment technology when there are only 35,000 "victims" a year.
One thing I'd also say is that...
My life was transformed by finding the Oral Cancer Foundation.
When was your last experience with this nonprofit?
2009
