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Beth F.

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1 reviews

Review for Canavan Research Foundation, Inc., New Fairfield, CT, USA

Rating: 5 stars  

When my daughter was diagnosed with Canavans Disease in 2004 we felt completely isolated and alone. It was wonderful to know that there are other families out the dealing with the same struggles that we are experiencing. I have asked all my friends to donate to canavan research foundation in honor of my birthday to help find a cure for this devastating disease so one day the family whos childs test comes back positive for Canavans disease does not get the same advice that we got...take her home love her prepare to say good bye because this is a death sentence... My hope is that one day they will instead hear " we can cure this "

I've personally experienced the results of this organization in...

Gaining knowledge of current research

If I had to make changes to this organization, I would...

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Role:  Client Served & Asked all my friends to donate in honor of my birthday.