My Nonprofit Reviews

I’ve worked with the Usher Syndrome Society for a number of years now, and I couldn’t be more proud to be part of the incredible work they’re doing to raise awareness and research funding for Usher syndrome, a rare disease that most people have never heard of.

My mom, Nancy Corderman, started the organization after two of my siblings were unexpectedly diagnosed with Usher syndrome about ten years ago. I became more involved about five years ago, and it’s been amazing to witness how much the Society has grown and the impact it’s making. From establishing their own scientific advisory board to launching global research grants aimed at finding treatments for all types of Usher syndrome to launching a groundbreaking campaign in 2024 featured on 9 Times Square billboards, the Usher Syndrome Society is truly changing the future for people and families living with this disease.

I’m beyond proud of my mom’s unwavering commitment to finding treatments and a cure for her children (my siblings) and I’m so grateful to everyone who continues to support the USH Society’s awareness and research efforts. The organization is also deeply connected to the USH community, and I’ve been lucky to meet so many amazing people through our events and during the photography sessions for the Shine a Light on Usher Syndrome Global Exhibit. Getting to know these individuals and families and hearing their stories has given me a powerful perspective on what it means to live with resilience, hope, and strength.