My Nonprofit Reviews

I met my best friend in 2005 but I had never heard of Usher Syndrome until she educated me about it. Over 20 years of friendship, I have had the great pleasure of meeting countless people in the Usher Syndrome community, but none have had as much of an impact on me as Nancy Corderman, her family, and the entire team at Usher Syndrom Society. As others have stated already (better than I can), USS is not just about one thing. They represent all the beautiful complexity that exists in this small but mighty community. They tell stories of reslience, strength, grief, determination, setbacks and triumphs. What started out as a "photo exhibition" has evolved into a full spectrum support system that not only tells incredible individual stories but also contributes to important initiatives like an Usher Syndrome summer camp for pre-teens and teens, innovative research collaborations with major hospitals, and global multi-media awareness campaigns. Anyone with an Usher Syndrome diagnosis for themselves or a family member finds a very welcoming home in this community and Usher Syndrome Society is at its heart.

I happen to focus on science and research in my role with USS and I am proud to say that we have thoughtfully and strategically deployed millions of dollars to some of the most innovative research teams and universities in the world. I am proud to know that if a scientist has an idea about a treatment or cure, they know that USS should be the first stop to make their proposal. The team is open minded, thorough, responsive and fair. I have great faith that these grants and efforts will bear fruit in the near future.