My Nonprofit Reviews

kiciora83
Review for SynGAP Research Fund - SRF (SYNGAP1), San Diego, CA, USA
As a parent of a child diagnosed with SYNGAP1 three years ago, I know how overwhelming this journey can be. Uncertainty, lack of information, and countless unanswered questions became part of our daily life. Fortunately, we found the SRF Foundation, and it changed everything.
Thanks to their support, we were able to establish the right treatment and therapy tailored to our child's needs. Their knowledge, access to experts, and dedication to SYNGAP1 research gave us the reassurance that we are not alone in this fight.
SRF also helped us connect with other parents – amazing people who not only share their experiences but also become friends and a source of strength in difficult moments. This community provides the motivation to keep going.
Most importantly, SRF gives us hope – real hope, grounded in science and continuous research. Because of them, we truly believe that the future may bring a breakthrough in SYNGAP1 treatment.
If you are a parent of a child with SYNGAP1 and feel lost – the SRF Foundation is the place that will help you find your way. Thank you for everything! ❤️