My Nonprofit Reviews

I was diagnosed with Usher Syndrome Type 2A, a disease I had never heard of, at a time I didn't think my life had any limitations. I was in shock, reeling from the news that my vision and hearing would one day be gone. After being in denial for several years, I chose to fight back. With the support of a fellow board member, Sophia Boccard and our founder, Nancy Corderman (who has more passion in her pinky than many of us could dream of having), I joined the Board of the Usher Syndrome Society. With this incredible, talented and determined group, I knew we could move the needle. Not only is the Usher Syndrome Society raising awareness in innovative ways, we are committed to funding research projects that ensure progress is being made. Art gets people's attention, which is what we need... for the world to know we need everyone's help in finding a cure for Usher syndrome.

While we are making great strides, there is much work to be done. This work could move more quickly with government support and funding. The Usher Syndrome Society is also working tirelessly to maintain/add to existing vision loss research funding within the National Institutes of Health, National Eye Institute.

My faith in the Usher Syndrome Society's mission has not once faltered. For as long as it takes, I will continue be a part of this quest for cure. The Usher Syndrome Society fight not only for ourselves and loved ones, but for the 400,000+ people worldwide dealing with the physical and mental challenges of Usher syndrome.