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frank thibault

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1 reviews

Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA

Rating: 5 stars  

I was a founding member of CFRI back in the 1960's and had several children with cystic fibrosis who, with me and my wife, benefited from information and moral support this organization has provided. And of course CFRI has, through its research grants, substantially contributed to the ever-ongoing improvements in the treatment of CF patients and understanding of the disease. Our first two children with CF, born in the sixties, died before they were six; our last was twenty-one. Many now are twice her age. Thanks in part to CFRI, the life expectancy goes up and up.

I've personally experienced the results of this organization in...

CFRI introduced me to parents of CF children who, in a feeling of being overwhelmed by the news of having a child with CF, needed some assurance that they could deal with it and some thoughts on how.

If I had to make changes to this organization, I would...

I think CFRI is really functioning well.

Role:  Volunteer & As a former English teacher, I helped jobless Hispanic women learn English. I created slantboards for use in doing postural drainage on children with CF. nic women learn English. women.
 
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