My Nonprofit Reviews

The Castleman Disease Collaborative Network (CDCN) has been a life-changing organization for my family and me. I discovered the CDCN in its early stages after my daughter, Katie, was diagnosed with Castleman Disease before she was even 2 years old. It was an incredibly frightening and isolating time, but Dr. David Fajgenbaum and the CDCN gave us hope. Dr. Fajgenbaum not only advocated tirelessly for Katie to find the right treatment but also became like family to us during our journey.

Over the past 10+ years, I have had the privilege of fighting alongside Dr. Fajgenbaum and advocating for other patients and families who are facing the same battle we did over a decade ago. Katie is alive and thriving today because of the incredible work the CDCN does every day—advancing research, providing critical support, and saving lives.

Without the CDCN, their dedicated team, and the unwavering commitment of everyone involved, Katie and so many others would not be here today or enjoy the quality of life they have. The CDCN is more than an organization; it’s a lifeline for patients and families, and I am forever grateful for their mission and the impact they continue to make and even more grateful that I am able to continue to advocate for this organization.