My Nonprofit Reviews

We were introduced to the CDCN when our 13 year old son was hospitalized and diagnosed with idiopathic multi-centric Castleman Disease with TAFRO syndrome. This is a rare and severe disease that many doctors are unfamiliar with and unsure how to treat. Our son's organs were shutting down when he was diagnosed but the doctors at Children's Hospital of Philadelphia contact the CDCN for advice and a treatment plan was quickly put into place. Founder of the CDCN, Dr. David Fagjenbaum, visited us on the day Joey was diagnosed and shared that he has the same condition as Joey, even the same subtype. He answered all of our questions and gave us hope that Joey would live a normal life with proper treatment. 6 years later, we have stayed connected with the CDCN and have watched countless other people receive life-saving care as a result of the CDCN's research and hard work. We are so fortunate to have them in our lives!