My Nonprofit Reviews

I took a cruise Nov 2023, and when I got back the world was still moving. Eventually in February 2024 I saw a neurologist who diagnosed me with MdDS. At that time I did not even realize MdDS was a thing. The website mddsfoundation.org was a great resource for better understanding the condition I had. It had a video I could point people to in order to try and explain the condition I was experiencing. It had a scale I could use for tracking my symptoms and communicating how I was doing to my family. It had brochures I was able to print out and share with my other doctors who had never heard of the condition. It also has an active Facebook community where I was able to connect with other people and not feel so alone. This organization helped to give me the tools for coping with the situation I was dealing with, and I honestly don't know how I would have coped without this support.