My Nonprofit Reviews

I have had MdDS for 9 years now. This organization has been my rock in times of trouble. They have linked me to the specialists, gotten me through days of depression and doubt and provided the inspiration to carry on. The Foundation proactively seeks to further the research and inform the public and the medical profession about this rare syndrome. I have taken the brochures to providers and people that I have met who are skeptical. The MdDS Foundation is our advocate and support. They truly are the best and I am grateful for those who administer the list and move this organization forward.