My Nonprofit Reviews

My 17 year old son was born with Alagille Syndrome. We felt so alone during the first few years of his life because we did not know of the Alagille Syndrome Alliance. He was so miserable and sick and there was limited information on the internet or even doctors could give us about Alagille syndrome. We had many many dark days without knowing anyone to look to for support through this journey. What a blessing and relief it was to have found the Alliance when we did. They offer such a tremendous amount of support to Alagille patients and their families. They offer financial, and emotional support to families among many other things. The research they are conducting/participating in is incredible as well. We do not feel alone navigating this disease any more. They have connected us to so many other families that have or are going through similar situations and are on this Alagille journey. We are beyond thankful for the ALGS Alliance!