My Nonprofit Reviews

Myositis Support and Understanding (MSU) is an exceptional non profit. I have been a member of MSU for a few years now, and decided to become a volunteer in January 2023. I was diagnosed with Juvenile Dermatomyositis when I was 7yrs old. Back then, there were no support groups to help people of any age. Not just with the physical aspect, but emotional trauma that comes with this disease. I'm now 48, and have been in a flare for a few years now. It was when I could no longer work and wondered if there were any support groups. That is when I found MSU. Even though I live in Canada (originally from Australia), MSU accepted me unconditionally. It was such a relief to meet people with similar complications of this disease, without judgement. MSU genuinely cares and is focused about people with myositis. In fact, MSU feels more like a family. MSU provides different types of support groups, a Financial Assistance Program, webinars, and so much more, with a strong committed focus on people. I have tried to be a part of other myositis organizations, but didn't feel the warm and genuine connection like I do with MSU.