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Jazmandi

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1 reviews

Review for Fabry Support Information Group, Concordia, MO, USA

Rating: 5 stars  

Upon learning of our son’s rare disease diagnosis, our family was overwhelmed, scared and lost. FSIG became a ground zero for us to learn of Fabry, resources, community, and vital support we desperately needed. I mean it when I say FSIG helped me learn and keep me afloat in developments to support our son along this journey.

A heart-filled thank you to FSIG for the dedication to support families in their darkest hour rippled with release and uncertainty. FSIG made the new norm transition so much more smoother.

Role:  Client Served