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juliambird

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1 reviews

Review for Alagille Sydrome Alliance, Washington, DC, USA

Rating: 5 stars  

The ALGSA has been an essential part of my family’s journey with Alagille Syndrome. They have given us an incredible amount of support over the years, from connecting us with physicians to helping us financially during trying times. More recently, they started a program that address mental health and how challenging navigating this disease can be. We meet monthly with a psychologist to help us access support and resources to address caregiver and patient anxiety and PTSD. I cannot say enough wonderful things about this organization. They do SO much for this community and truly are fighting for a better life for ALGS Warriors and families.

Role:  Board Member