My Nonprofit Reviews

My son Tony spent his young life attending CF camp in Oregon, becoming a counselor as he grew into an adult. Then The CF camps here had to close due to the deadly contagions that sepacia brought. Those camps were his anchor and a vital link to dealing with his disease. He and his young friends dealt with issues of life and death sharing things most of us don't have to face for decades.
Then after some years, he faced the inevitable and had a Transplant at Stanford. There he met Ana and learned about CFRI and the conference and camp they sponsor every year in California. CFRI gifted him with a scholarship.
I still hear him coming back from that experience:
"Mom, I can't tell you what this means. It's so incredible to be able to talk and share on this level again.. I feel like I've found such meaning in life with these people." He went on from there to lead a California team in the Transplant games...a highlight in all our lives. And he brought the beautiful, inspirational people he met at CFRI into our lives. We have been blessed by them, long after losing our son..
Last summer we traveled to the camp sponsored by CFRI. We saw young adults laughing and creating, living life fully as our son did.
They invited us to share in a few of their sessions. Those few hours enriched our lives beyond measure.
As my husband said then to these incredible young people: You can't be ordinary. You're "exrta ordinary"...and we are so blessed to have you in our lives.
CFRI continues to help make all that possible. They truly touch and change lives.

Dolores Diprofio Creede

More Feedback