My Nonprofit Reviews
Sally K.
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
My son was diagnosed with Cystic Fibrosis at the age of 6 months back in 1983. CFRI was a source of hope and encouragement to me than, and has continued to be a source of encouragement to me through the years. When my son was younger, he went to the camps CFRI held ea ch summer. As he got older, he attended the annual retreats that CFRI funds. CFRI puts on an annual educational weekend for those with CF, parents,siblings, and friends. These have been an invaluable source of education for the CF community. CFRI also funds some great research. This organization has mad a difference in my life, and countless others.
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I've personally experienced the results of this organization in...
The support I received when my son was diagnosed was invaluable. The educational conferences that this organization holds annually has kept me informed.
If I had to make changes to this organization, I would...
There is nothing I would change. They do a fantastic job.