My Nonprofit Reviews

Our son was diagnosed before his first birthday - over 10 years ago. Not long after diagnoses we found this organization and have been so thankful to have access to their resources and community. Through them we have been able to meet other families who understand the journey of a rare medical condition and have been able to have informed conversations with our son's medical team. Out of a immense appreciation for the organization I have been volunteering as a member of their Board of Directors for the past 5 years and have seen how much genuine care and hard work goes into running Hope for HH. The volunteers are passionate, dedicated, and truly care about improving the lives of our community.