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CSoeby

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1 reviews

Review for Hope for Hypothalamic Hamartomas, Eagle, ID, USA

Rating: 5 stars  

This organization was started by Mom's looking for answers for their kids. I was one of those kids! When I was diagnosed at 3 months of age, there were no treatments and the doctors said I would be in a group home by age 5. I am now 27 - tumor free and seizure free and living an incredible life thanks to the work of those incredible Mom's, researchers, doctors, advocates and countless volunteers! They have all worked tirelessly with limited resources and created an international organization that has driven change and created HOPE!

Role:  Client Served