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catherinesawyer

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1 reviews

Review for Hope for Hypothalamic Hamartomas, Eagle, ID, USA

Rating: 5 stars  

HOPE is such a special charity to me because it has supported my friend so very much through her darkest days suffering with such a difficult illness. The community within this charity are warm and caring but also share a huge wealth of knowledge about HH and the difficulty families and patients face. Stories of wins also are shared and this charity continues to fight to find new ways to support those struggling and how individuals can recover and have a good quality of life.

Role:  General Member of the Public