My Nonprofit Reviews
Jeff J.
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
I first learned about CFRI 41 years ago when my daughter was born with CF. Because the organization is made up mostly by parents of children with CF (and now people with CF), as well as their close friends, there was never a question about what their overriding goal was. Over all those years the leadership has always been selfless and remarkably committed. I have had so many questions answered, and so many fears allayed by talking with members of CFRI that I'll never be able to adequately express my appreciation.
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
When my daughter was diagnosed with CF, friends who also had a child with CF told us about CFRI. It was the beginning of a long relationship, which eventually resulted in me changing my field of research to CF. CFRI was incredibly supportive as I made the difficult change--I couldn't have done it without them.
In the many years since, they have provided a constant source of information and support to the local CF community--and eventually their efforts have affected people all over the world.
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I've personally experienced the results of this organization in...
see above.
If I had to make changes to this organization, I would...
Make it richer!
