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JDA72

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1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

TSC Alliance helped us tremendously when our adult son was diagnosed with TSC2 (at the time we just knew Tuberous Sclerosis). They found him a neurologist to go to (most people get diagnosed younger and they transition to an adult TSC neurologist) as I couldn't find any neurologists that could see him within 6-12 months. I sent in an email request to TSC Alliance for help on Memorial Day in 2021 and we were seen at the neurologist on June 10th. They have the sweetest, most dedicated staff. They are truly a blessing. They are still a great source of new knowledge as things are constantly changing and progressing.

Role:  Client Served