My Nonprofit Reviews

I am the younger sibling by 3 1/2 years but I've always been the "big, "little", sibling" to my brother with Fragile X syndrome. I've watched him participate in various drug trials over the years, all funded (at some point) by FRAXA. Recently I returned home from my first year of studying in the UK. While I was away, my brother started a new drug trial that I've been following since FRAXA first funded it through it reaching the phase of clinical trials my brother could participate in. I could not believe the difference in him when I returned. He handled the airport crowd, greeted me with a huge hug, took lots of pictures (which he hates!), and waited patiently for my luggage - all while cracking jokes and having the best time. He now calls me regularly on Facetime and the phone to talk, something that has improved significantly since starting the trial. The difference in him has been nothing short of a miracle. And I know we have FRAXA to thank for that. FRAXA gives families everywhere so much hope for a better future. I've seen their advances over the years and am certain that even more amazing things are coming thanks to the research they are funding. I've met many other siblings over the years from many countries, I know I am not alone in saying that we, as siblings, appreciate FRAXA and the work they do, the dedication to the research they fund, and the hope they give us all.