My Nonprofit Reviews

My Journey with Indo-US Organization for Rare Diseases
When I found out my child had a rare illness called leukodystrophy, I felt scared and lost. I didn't know where to turn for help. Then, I discovered the Indo-US Organization for Rare Diseases. They became a big help for me, especially through a representative named Ramya Tkarur.
Ramya was really understanding and knowledgeable about rare diseases like leukodystrophy. She listened to my worries and gave me useful information. She even connected me with other people who knew about the illness and could offer advice and support.
Through Indo-US Organization, I learned about different treatment options and how to find specialists. Ramya made sure I had all the help I needed, and she's still there for me, checking in regularly and offering assistance.
I'm really grateful for the support has given me. They've made me feel hopeful about my child's future and reminded me that I'm not alone in this journey.